Name
Dr Sion Williams
Position
RCBC Wales Senior Health Career Research Fellow/Lecturer in Nursing
Email
hss042@bangor.ac.uk
Phone
+44 (0) 1248 388451
Location
Fron Heulog

Staff Profile: Dr Siôn Williams

Dr Siôn Williams

Research Interests
Siôn Williams is a (www.rcbcwales.org) Senior Health Career Research Fellow and is exploring how community and hospital-based services maintain stability and manage the decline of people with Chronic Obstructive Pulmonary Disease (COPD) and their families. It also examines the role of the multidisciplinary team (MDT) in providing assessment, intervention, rehabilitation and palliative care as people attempt to adapt to their life with COPD.

As an Rcbc Wales Research Fellow he has researched the experiences of older people with Parkinson’s disease and developed a grounded theory to understand the transitions experienced by patients and their families as they encountered greater disability (LINK TO REPORT). It highlighted the importance of strategies developed by people themselves in managing their condition and coping with a degenerative disease. The research also mapped how patients and their families living at home could be better supported by community-based health and social care teams and Movement Disorder Clinics.

The Rcbc Senior Career Fellowship further develops his interest in researching how people adjust and cope with long term conditions. A particular aspect of his work is the development of qualitative methodologies through a participatory approach, using modified grounded theory, narrative research and testimony. A key strand of this work involves a programme of constructivist grounded theory studies in North Wales in collaboration with Professor John Keady, University of Manchester through a series of empirical studies examining adjustment to life with Parkinson’s disease, Alzheimer’s Disease, stroke and rheumatoid arthritis.

Maintaining stability, managing decline and bridging transition in Chronic Obstructive Pulmonary Disease: developing a model of adjustment, shared decision making and self management
The study utilises a grounded theory approach and seeks to understand how people with COPD and their families adjust to the demands of a life with a range of distressing symptoms, a decline in wellbeing and adapt to the impact of COPD on their daily life and future lives. It explores the relationship between multidisciplinary team members, people with COPD and their families and how shared decision making and self management is supported. The study seeks to understand the integration of these perspectives in informing how people with COPD live with their chronic illness, what they do to adjust to the circumstances they find themselves and who is involved in their adjustment work. It also seeks to develop an understanding of the link between the strategies used by multidisciplinary practitioners in the respiratory services in supporting adjustment in people with COPD.

The study seeks to address the improved management of chronic conditions by examining COPD as an important area that demands investigation but also as a case exemplar focused on how best to achieve closer partnership working between professionals, patients and their familiesas part of the  integrated management of complex care. COPD is a key priority area not only in the UK (RCP, 2003) but also in Wales (WAG, 2007) and though structural guidance and policy is in place (WAG, 2007; NICE, 2004) there has been limited attention to the underpinning social processes of engaging people with COPD and their families in practice. There is a lack of evidence that addresses the strategies and subjective experiences of people living

The study will utilise a change management process based on the PARiHS framework (Kitson et al 2008; Rycroft-Malone, 2004) to engage in knowledge transfer with the participating NHS Trusts). The knowledge transfer process will be informed by the adaptation of PARiHS . As part of the PARiHS framework the implementation process will focus on ‘evidence’, ‘context’ and ‘facilitation’ (Kitson et al, 2008).

Funded Research


Title

Role

Funder

Award

Date

Maintaining stability, managing decline and bridging transition in Chronic Obstructive Pulmonary Disease: developing a model of adjustment, shared decision making and self management.

Principal Investigator

RCBC Wales and The Health Foundation

£147, 257

2009-2011

Developing a grounded theory of later adjustment in older people with Parkinson’s disease and their families

Principal Investigator

The Health Foundation and WORD

£90,000

2006-2009

Challenging the politics of Evidence-Based Practice: exploring the testimony of stroke survivors in the community

Principal Investigator

The British Academy

£7,319

2006-2007

Publications