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We Care: Women’s Empowerment: Cervical screening Access, Recovery and Empathy

Measuring the impact of enhancing cervical screening care for women who have experienced sexual violence and abuse (SV&A)

Welcome to the research project page for the study We Care: Women’s Empowerment: Cervical screening Access, Recovery and Empathy. 

This is a 5-year study funded by Health and Care Research Wales and the National Institute for Health and Care Research. 

Logo for the We Care project - Women's Empowerment: Cervical Screening Access, Recover and Empathy

Background and rationale

Cervical cancer is found anywhere in the cervix area and is one of the most preventable forms of cancer. Despite this, cervical cancer is one of the most common cancers among women and contributes significantly to the global burden of Disability Adjusted Life Years (DALY). Estimates indicate that in the UK one in four girls experience childhood sexual abuse and one in three women experience sexual violence. The limited qualitative research with victims-survivors of sexual violence and abuse (SV&A) makes it difficult to fully understand their experiences of health screening services. This project seeks to address this gap by diversifying research participation and explore the voices of underheard groups with the aim of reducing health and social inequalities and contributing to research, policy and practice. To achieve parity in healthcare provision, women who are unable to access cervical screening should be supported to do so. 

The aim is to explore the uses and limitations of the current cervical screening care provision in Wales, England, Sweden and Australia for women who have experienced SV&A, to inform the enhancement to this service and measure the impact of this enhancement. The focus is on women’s diverse and comparative experiences of cervical screening care across Wales, England Sweden and Australia. The comparative research sites will ensure variations in the experiences of women, provide an intersectional lens and international standing to this project. This project aligns with the aim of preventing ill health, promoting engagement with preventative services, and improving public health and social care.

Study aim and Objectives 

The overall aim is to measure the impact of enhancing cervical screening care provision in Wales, England, Sweden and Australia for women who have experienced SV&A. 

The key objectives are focused on: 

  • Co-producing the development of the research with women with living experiences of SV&A (through the Project Advisory Group) and with practitioner stakeholders (through the Project Steering Group).
  • Identifying the nature of the issues experienced by women who have experienced SV&A, when accessing cervical screening care provision in Wales, England, Sweden and Australia.
  • Completing systematic reviews of the literature to inform the knowledge and evidence for this study to be applied across all study workstreams.
  • Exploring the uses and limitations of the current cervical screening care provision.
  • Advancing knowledge to support the development of a theoretical and evidence-based practice model focused on enhancing care provision for women.
  • Developing an evidence-based practitioner toolkit to inform good practice and standards around enhancing care provision to build a model of compassionate care.
  • Completing a Social Return on Investment (SROI) analysis to measure the impact of the new practice model and toolkit. To complete additional economic evaluations of cervical screening.  

     

What does this project involve?

This research will be completed across six sequential workstreams of data collection, as summarised in the flow diagram below: 

Title: Sequential Workstream A sequential workstream diagram for developing an Intervention: Practice Toolkit and measuring the impact of enhancing cervical screening care: SROI. Governance and engagement run alongside the work: Project Advisory Group and Stakeholder Engagement, and Project Steering Group. The work then progresses through six workstreams: Workstream 1: Systematic reviews - (1) CSC and SVA; (2) Effectiveness CSC; (3) Economic Evaluation; (4) Compassionate care. Workstream 2: Survey, England

Title: Sequential Workstream

A sequential workstream diagram for developing an Intervention: Practice Toolkit and measuring the impact of enhancing cervical screening care: SROI. Governance and engagement run alongside the work: Project Advisory Group and Stakeholder Engagement, and Project Steering Group. The work then progresses through six workstreams:

Workstream 1: Systematic reviews - (1) CSC and SVA; (2) Effectiveness CSC; (3) Economic Evaluation; (4) Compassionate care.

Workstream 2: Survey, England - HPV self-sampling.

Workstream 3: Workshops and interviews with women who have experienced sexual violence and abuse (n = 100).

Workstream 4: Workshops with multi-agency professional stakeholders (n = 100).

Workstream 5: Co-production of intervention: practice model and toolkit.

Workstream 6: Economic evaluation - Social Return on Investment (SROI) and cost-effectiveness analysis.

The Project Team

Dr Ceryl Teleri Davies, from the Centre for Health Economics and Medicines Evaluation is the project lead, which is funded as part of a 5-year Advanced Fellowship. Ceryl has a practice background in social work, including practice and research experience in supporting young women and women who have experienced domestic abuse. You can read more about her research interests and practice on this webpage: link to webpage. Ceryl is provided with project support from Kalpa Pisavadia, Research Project Support Officer  and four academic mentors:

  • Professor Helen Weatherly, Centre for Health Economics, University of York, York, UK: helen.weatherly@york.ac.uk
  • Professor Deborah Fitzsimmons, Swansea Centre for Health Economics, Swansea University, Swansea, UK: d.fitzsimmons@swansea.ac.uk
  • Dr Sion Williams, School of Health Sciences, Bangor University, Bangor, UK: sion.williams@bangor.ac.uk
  • Professor Rhiannon Tudor Edwards, Centre for Health Economics and Medicines Evaluation (CHEME), School of Health Sciences, Bangor University, Bangor, UK: r.t.edwards@bangor.ac.uk

The project team consists of the following key partners: