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Professor Gill Windle

Professor / Director of Impact and Engagement

g.windle@bangor.ac.uk

+44 1248 383968

0000-0003-0479-1172

Professor Gill Windle

View Professor Gill Windle’s profile on the Bangor Research Portal

Overview

Gill Windle (BSc; MSc; PhD) is a Chartered Psychologist and Gerontologist who specialises in interdisciplinary research. She is the Director of DSDC Wales and the Associate Director of the Wales Centre for Ageing and Dementia Research (CADR). Gill’s research aims to improve the health, wellbeing and resilience of older people, people with dementia and their supporters, and improve care and service provision.

Gill leads and contributes to mixed-methods studies and intervention trials, and has led and contributed to externally won research funding totalling £19,858,090.00, representing £10,464,912.00 from UK Research Councils (ERSC; MRC; AHRC),  £7,142,988.00 from Welsh Government research infrastructure awards and £ 2,102,190.00 from other sources including the Wellcome Trust. Her most research achievement is the award of £1,480,000.00 from the National Institute of Health Research to lead a randomised controlled trial of a digital health intervention ‘iSupport’ to help dementia carers develop skills and take care of themselves.

Her work has informed Welsh policy development, and in 2001 as a post-graduate research assistant she co-authored six literature reviews with Professor Vanessa Burholt to inform the development of the first Strategy for Older People in Wales. She also led a review to inform the Healthy Ageing Action Plan (Welsh Assembly Government 2005). Following her PhD in 2006, she was seconded to the Older People’s Strategy Unit at the Welsh Assembly Government during the 2006/07 interim review period of the strategy, and was a member of the Strategy Advisory Group.

Between 2016 and 2018 she was a member of the Welsh Government dementia strategy task and finish group, and is currently a member of a Welsh Government group overseeing the implementation and impact of the dementia strategy. As part of this work, she is involved in two working groups (implementation of dementia care standards; learning and development), and the North Wales dementia strategy implementation steering group.

In recognition of her work she was awarded a personal chair by Bangor University in 2018.

REF 2021

Gill's individual research outputs were submitted into the UoA3 REF assessment which contributed to the submission being ranked 15th overall in the UK. 95% of this submission was classified as world leading or internationally excellent. Her interdisciplinary research led to the submission of a REF 2021 impact case study ‘Innovations in Dementia Care’ https://www.bangor.ac.uk/ref-2021#3

Current research projects include the following topics: 

  • Leading the development of a conceptual framework of resilience for people living with dementia
  • Leading the development of the first outcome measure of resilience for people living with dementia
  • Leading a programme of work including an RCT examining a technology developed by the World Health Organisation 'iSupport for dementia carers'

Teaching and Supervision

Please look at the research themes here http://dsdc.bangor.ac.uk/research.php.en

Current PhD projects:

Bethan Naughton Morgan. 'Adapting an e-health intervention i-Support for carers of people living with rare dementias. (ESRC studentship).

Laura Braithwaite Stuart. 'Exploring communication in dementia: An intergenerational family systems approach'. (NHS studentship).

Hannah Jelly. 'Co-Creating a resilience-building framework for people with dementia and their carers’. (HCRW social care studentship).

Postgraduate Project Opportunities

I'm particularly interested in highly motivated, output-focussed people who are interested in health, wellbeing and resilience in later life; interventions to support older people and their carers to age well;  living as well as possible with chronic and degenerative health conditions, such as dementia.

2023 - Excellent MSc project opportunties! Secondary analysis of existing data (quantitative) - topics include i) hearing loss, cognitive function and the links with loneliness; ii) resilience in carers of people living with rare dementias; iii) validation of an established resilience outcome measure for use with dementia carers.

There are also possible opportunities within my recent grant which is looking at supporting people living with dementia, including those with rare dementias.

Please look at our research themes http://dsdc.bangor.ac.uk/research.php.en

Publications

2025

  • PublishedEvaluating the effects of the World Health Organization's online intervention ‘iSupport’ to reduce depression and distress in dementia carers: a multi-centre six-month randomised controlled trial in the UK
    Windle, G., Flynn, G., Hoare, Z., Goulden, N., Masterson Algar, P., Edwards, R. T., Anthony, B., Kurana, S., Spector, A., Hughes, G., Proctor, D., Ismail, F., Jackson, K., Egan, K. & Stott, J., Jan 2025, In: Lancet Regional Health - Europe. 48, 101125.
    Research output: Contribution to journal › Article › peer-review
  • E-pub ahead of printiSupport for rare dementias: a mixed-methods non-randomised feasibility study of an online self-help programme for carers
    Naunton Morgan, B., Windle, G. & Lamers, C., 30 Apr 2025, (E-pub ahead of print) In: Pilot and Feasibility Studies. 11, 58.
    Research output: Contribution to journal › Article › peer-review
  • PublishedThe psychometric properties of a new outcome measure of resilience for people living with dementia: The Bangor Dementia Resilience Scale
    Roberts, J., MacLeod, C., Windle, G., Hoare, Z., Stott, J., Sullivan, M. P., Camic, P., Brotherhood, E. & Crutch, S., 15 Apr 2025, In: BMC Psychology. 13, 388
    Research output: Contribution to journal › Article › peer-review
  • Accepted/In pressUniversal challenges of caring for someone living with dementia: experiences from the UK and Brazil
    Masterson Algar, P., Naunton Morgan, B., Jones, C. H., Torres Mattos Bezerra, E. & Windle, G., 1 Mar 2025, (Accepted/In press) Journal of Dementia Care, 33, 2.
    Research output: Contribution to specialist publication › Article

2024

  • Published“It’s a Postcode Lottery”: How Do People Affected by Dementia in Wales Experience Their Diagnosis and Post-Diagnostic Support, and How May These Be Improved?
    Roberts, J., Windle, G., MacLeod, C., Sullivan, M. P., Camic, P., Stott, J., Brotherhood, E., Jackson, K. & Crutch, S., 30 May 2024, In: International Journal of Environmental Research and Public Health. 21, 6, 709.
    Research output: Contribution to journal › Article › peer-review
  • Published‘Misdiagnosed and Misunderstood’: Insights into Rarer Forms of Dementia through a Stepwise Approach to Co-Constructed Research Poetry.
    Camic, P., Sullivan, M. P., Harding, E., Rossi-Harries, S., Grillo, A., McKee-Jackson, R., Stott, J., Brotherhood, E., Windle, G. & Crutch, S., 17 Feb 2024, In: Healthcare. 12, 4, 485.
    Research output: Contribution to journal › Article › peer-review
  • PublishedOnline support for South Asian dementia caregivers
    Kurana, S., Spector, A., Azadi, A., Ahuja, B., Proctor, D., Windle, G., Flynn, G., Singh, G., Mukatay, N., Masterson Algar, P., Mahmood, S., Stott, J. & Fisher, E., 1 Sept 2024, In: Journal of Dementia Care. 32, 5, p. 26-29
    Research output: Contribution to journal › Article › peer-review
  • PublishedPhysical Activity Mobile App (CareFit) for Informal Carers of People With Dementia: Protocol for a Feasibility and Adaptation Study
    Egan, K., MacDonald, B., Hodgson, W., Kirk, A., Fawcett, B., Dunlop, M., Flynn, G., Stott, J. & Windle, G., 12 Sept 2024, In: Journal of Medical Internet Research. 13, 9 p., e53727.
    Research output: Contribution to journal › Article › peer-review
  • PublishedThe Comprehensive Resilience-building psychosocial Intervention (CREST) for people with dementia in the community: a feasibility and acceptability study
    Casey, D., Doyle, P., Gallagher, N., O Sullivan, G., Smyth, S., Devane, D., Murphy, K., Clarke, C., Woods, B., Droes, R.-M., Windle, G., Murphy, A., Foley, T., Timmons, F., Gillespie, P., Hobbs, A., Newell , J., Abedin, J., Domigan, C. & Irving, K. & 1 others, Whelan, B., 9 Nov 2024, In: Pilot and Feasibility Studies. 10 , 28 p., 10.
    Research output: Contribution to journal › Article › peer-review
  • PublishedThe Diagnostic Pathway Experiences of People Living with Rare Dementia and Their Family Caregivers: A Cross-Sectional Mixed Methods Study Using Qualitative and Economic Analyses
    Davies Abbott, I., Anthony, B., Jackson, K., Windle, G. & Edwards, R. T., 16 Feb 2024, In: International Journal of Environmental Research and Public Health. 21, 2, 231.
    Research output: Contribution to journal › Article › peer-review

2023

  • PublishedAdaptation of an eHealth Intervention: iSupport for Carers of People with Rare Dementias
    Naunton Morgan, B., Windle, G., Lamers, C., Brotherhood, E. & Crutch, S., 28 Dec 2023, In: International Journal of Environmental Research and Public Health. 21, 1, 19 p., 47.
    Research output: Contribution to journal › Article › peer-review
  • PublishedAdapting the World Health Organisation’s ‘iSupport’ for Young Dementia Carers
    Masterson Algar, P. & Windle, G., 2 Feb 2023, p. 34.
    Research output: Contribution to conference › Abstract › peer-review
  • PublishedBetter Living with Non‑memory‑led Dementia: protocol for a feasibility randomised controlled trial of a web‑based caregiver educational programme
    Suárez‑González, A., John, A., Brotherhood, E., Camic, P., McKee‐Jackson, R., Melville , M., Sullivan, M. P., Edwards, R. T., Windle, G., Crutch, S., Hoare, Z. & Stott, J., 11 Oct 2023, In: Pilot and Feasibility Studies. 9, 1, 13 p., 172.
    Research output: Contribution to journal › Article › peer-review
  • E-pub ahead of printDementia in rural settings: A scoping review exploring the personal experiences of people with dementia and their carers
    Williams, J., Windle, G., Story, A., Brotherhood, E., Camic, P., Crutch, S., Stott, J., Sullivan, M. P. & Grillo, A., 8 Mar 2023, (E-pub ahead of print) In: Ageing and Society. 30 p.
    Research output: Contribution to journal › Article › peer-review
  • PublishedDeveloping bi-lingual peer guides to living with dementia: the Knowledge is Power series
    Jones, C. H., Roberts, J., Caulfield, M. & Windle, G., Oct 2023.
    Research output: Contribution to conference › Paper › peer-review
  • PublishedDevelopment of an item pool for a patient reported outcome measure of resilience for people living with dementia
    Roberts, J., MacLeod, C., Hoare, Z., Sullivan, M. P., Brotherhood, E., Stott, J. & Windle, G., 27 Sept 2023, In: Journal of Patient-Reported Outcomes. 7, 1, 96.
    Research output: Contribution to journal › Article › peer-review
  • PublishedFrom deficits to possibilities: the role of resilience
    Windle, G. & Roberts, J., 1 Mar 2023, In: Journal of Dementia Care. 21, 2, p. 33-35
    Research output: Contribution to journal › Article › peer-review
  • PublishedHard to Reach and Hidden: Improving the Identification of Young Dementia Carers
    Masterson Algar, P., Egan, K., Flynn, G., Hughes, G., Spector, A., Stott, J. & Windle, G., 23 Nov 2023, In: International Journal of Environmental Research and Public Health. 20, 23, 15 p., 7103.
    Research output: Contribution to journal › Article › peer-review
  • Published'I have never bounced back': resilience and living with dementia
    Windle, G., Roberts, J., MacLeod, C., Algar-Skaife, K., Sullivan, M. P., Brotherhood, E., Jones, C. H. & Stott, J., 2 Dec 2023, In: Aging and Mental Health. 27, 12, p. 2355-2367 13 p.
    Research output: Contribution to journal › Article › peer-review
  • PublishedKnowledge Is Power: Utilizing Human-Centered Design Principles with People Living with Dementia to Co-Design a Resource and Share Knowledge with Peers
    Roberts, J., Jones, C. H. & Windle, G., 18 Oct 2023, In: International Journal of Environmental Research and Public Health. 20, 20, 6937.
    Research output: Contribution to journal › Article › peer-review
  • PublishedSituating support for people living with rarer forms of dementia
    Sullivan, M. P., Camic, P., Harding, E., Stott, J., Windle, G., Grillo, A. & Crutch, S., 6 Oct 2023, In: BMC Geriatrics. 23, 1, p. 627 627.
    Research output: Contribution to journal › Article › peer-review
  • E-pub ahead of print‘The oxygen of shared experience’: exploring social support processes within peer support groups for carers of people with non-memory-led and inherited dementias
    Harding, E., Harries, S., Alterkawi, S., Waddington, C., Grillo, A., Wood, O., Brotherhood, E., Windle, G., Sullivan, M. P., Camic, P., Stott, J. & Crutch, S., 31 Mar 2023, (E-pub ahead of print) In: Aging and Mental Health. 17 p.
    Research output: Contribution to journal › Article › peer-review

2022

  • PublishedA qualitative systematic review of the role of families in supporting communication in people with dementia.
    Braithwaite- Stewart, L., Jones, C. H. & Windle, G., 23 Sept 2022, In: International Journal of Language and Communication Disorders. 57, 5, p. 1130-1153
    Research output: Contribution to journal › Article › peer-review
  • PublishedA systematic review and psychometric evaluation of resilience measurement scales for people living with dementia and their carers
    Windle, G., MacLeod, C., Algar-Skaife, K., Stott, J., Waddington, C., Camic, P., Sullivan, M. P., Brotherhood, E. & Crutch, S., 19 Nov 2022, In: BMC Medical Research Methodology. 22, 41 p., 298.
    Research output: Contribution to journal › Article › peer-review
  • PublishedEffects of an e-health intervention 'iSupport' for reducing distress of dementia carers: protocol for a randomised controlled trial and feasibility study
    Windle, G., Flynn, G., Hoare, Z., Masterson-Algar, P., Egan, K., Edwards, R. T., Jones, C., Spector, A., Algar-Skaife, K., Hughes, G., Brocklehurst, P., Goulden, N., Skelhorn, D. & Stott, J., 21 Sept 2022, In: BMJ Open. 12, 9, p. e064314
    Research output: Contribution to journal › Article › peer-review
  • PublishedeHealth and Web-Based Interventions for Informal Carers of People With Dementia in the Community: Umbrella Review
    Naunton Morgan, B., Windle, G., Sharp, R. & Lamers, C., 22 Jul 2022, In: Journal of Medical Internet Research. 24, 7, 15 p., e36727.
    Research output: Contribution to journal › Article › peer-review
  • PublishedExploring the impact of Covid-19 on the care and quality of life of people with dementia and their carers: A scoping review
    Masterson Algar, P., Hyde, M., Cheshire Allen, M., Keating, N. & Windle, G., 1 Feb 2022, In: Dementia: International Journal of Social Research and Practice. 21, 2, p. 648-676 29 p.
    Research output: Contribution to journal › Review article › peer-review
  • PublishediSupport for Young Carers: An Adaptation of an e-Health Intervention for Young Dementia Carers
    Masterson-Algar, P., Egan, K., Flynn, G., Hughes, G., Spector, A., Stott, J. & Windle, G., 22 Dec 2022, In: International Journal of Environmental Research and Public Health. 20, 1, p. 127 1 p., 127.
    Research output: Contribution to journal › Article › peer-review
  • PublishedNew insights into the genetic etiology of Alzheimer’s disease and related dementias
    EADB, GR@ACE, DEGESCO, EADI, GERAD, Demgene, FinnGen, ADGC, CHARGE, Bellenguez, C., MacLeod, C. A., Windle, G., Woods, B., Farrer, L. A., Psaty, B. M., Ghanbari, M., Raj, T., Sachdev, P., Mather, K. & Jessen, F. & 23 others, Ikram, M. A., de Mendonça, A., Hort, J., Tsolaki, M., Pericak-Vance, M. A., Amouyel, P., Williams, J., Frikke-Schmidt, R., Clarimón, J., Deleuze, J.-F., Rossi, G., Seshadri, S., Andreassen, O. A., Ingelsson, M., Hiltunen, M., Sleegers, K., Schellenberg, G. D., van Duijn, C. M., Sims, R., van der Flier, W. M., Ruiz, A., Ramirez, A. & Lambert, J.-C., Apr 2022, In: Nature Genetics. 54, 4, p. 412-436 25 p.
    Research output: Contribution to journal › Article › peer-review
  • PublishedPeer support for people living with rare or young onset dementia: An integrative review
    Sullivan, M. P., Williams, V., Grillo, A., Mackee-Jackson, R., Camic, P., Windle, G., Stott, J., Brotherhood, E. & Crutch, S., Nov 2022, In: Dementia: the international journal of social research and practice. 21, 8, p. 2700–2726 27 p.
    Research output: Contribution to journal › Article › peer-review
  • PublishedThe Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation
    Waddington, C., Harding, E., Brotherhood, E., Davies Abbott, I., Barker, S., Camic, P., Ezeofor, V., Gardner, H., Grillo, A., Hardy, C., Hoare, Z., McKee-Jackson, R., Moore, K., O'Hara, T., Roberts, J., Rossi-Harries, S., Suarez-Gonzalez, A., Sullivan, M. P., Edwards, R. T. & Van Der Byl Williams, M. & 8 others, Walton, J., Willoughby, A., Windle, G., Winrow, E., Wood, O., Zimmermann, N., Crutch, S. & Stott, J., 20 Jul 2022, In: JMIR Research Protocols. 11, 7, 13 p.
    Research output: Contribution to journal › Article › peer-review
  • PublishedThe Development of Virtual Videoconference-Based Support for People Living with Rare Dementias and Their Carers: Protocol for Support Group Evaluation
    Waddington, C., Harding, E., Brotherhood, E., Davies Abbott, I., Barker, S., Camic, P. M., Ezeofor, V., Gardner, H., Grillo, A., Hardy, C., Hoare, Z., McKee-Jackson, R., Moore, K., O'Hara, T., Roberts, J., Rossi-Harries, S., Saurez-Gonzalez, A., Pat Sullivan, M., Edwards, R. T. & Van Der Byl Williams, M. & 8 others, Walton, J., Willoughby, A., Windle, G., Winrow, E., Wood, O., Zimmermann, N., Crutch, S. J. & Stott, J., 20 Jul 2022, In: JMIR Research Protocols. 11, 7
    Research output: Contribution to journal › Article › peer-review
  • PublishedWhen One Health Meets the United Nations Ocean Decade: Global Agendas as a Pathway to Promote Collaborative Interdisciplinary Research on Human-Nature Relationships
    Masterson Algar, P., Jenkins, S., Windle, G., Morris-Webb, E., Takahashi, C. K., Burke, T., Rosa, I., Martinez, A. S., Torres-Mattos, E. B., Taddei, R., Morrison, V., Kasten, P., Bryning, L., Cruz de Oliveira, N. R., Gonçalves, L. R., Skov, M., Beynon-Davies, C., Bumbeer, J., Saldiva, P. H. N. & Leão, E. & 1 others, Christofoletti, R., 6 Apr 2022, In: Frontiers in Psychology. 13, 809009.
    Research output: Contribution to journal › Article › peer-review

2021

  • PublishedAdaptation of an e-health intervention ‘iSupport’ for carers of people living with rarer dementias
    Naunton Morgan, B. & Windle, G., 18 Dec 2021.
    Research output: Contribution to conference › Poster
  • PublishedA longitudinal exploration of mental health resilience, cognitive impairment and loneliness
    Windle, G., Hoare, Z., Woods, B., Huisman, M. & Burholt, V., Jul 2021, In: International Journal of Geriatric Psychiatry. 36, 7, p. 1020-1028 9 p.
    Research output: Contribution to journal › Article › peer-review
  • PublishedCommon variants in Alzheimer’s disease and risk stratification by polygenic risk scores
    de Rojas, I., Moreno-Grau, S., Tesi, N., Grenier-Boley, B., Andrade, V., Jansen, I. E., Pedersen, N. L., Stringa, N., Zettergren, A., Hernández, I., Montrreal, L., Antúnez, C., Antonell, A., Tankard, R. M., Bis, J. C., Sims, R., Bellenguez, C., Quintela, I., González-Perez, A. & Calero, M. & 283 others, Franco-Macías, E., Macías, J., Blesa, R., Cervera-Carles, L., Menéndez-González, M., Frank-García, A., Royo, J. L., Moreno, F., Huerto Vilas, R., Baquero, M., Diez-Fairen, M., Lage, C., García-Madrona, S., García-González, P., Alarcón-Martín, E., Valero, S., Sotolongo-Grau, O., Ullgren, A., Naj, A. C., Lemstra, A. W., Benaque, A., Pérez-Cordón, A., Benussi, A., Rábano, A., Padovani, A., Squassina, A., de Mendonça, A., Arias Pastor, A., Kok, A. A. L., Meggy, A., Pastor, A. B., Espinosa, A., Corma-Gómez, A., Martín Montes, A., Sanabria, Á., DeStefano, A. L., Schneider, A., Haapasalo, A., Kinhult Ståhlbom, A., Tybjærg-Hansen, A., Hartmann, A. M., Spottke, A., Corbatón-Anchuelo, A., Rongve, A., Borroni, B., Arosio, B., Nacmias, B., Nordestgaard, B. G., Kunkle, B. W., Charbonnier, C., Abdelnour, C., Masullo, C., Martínez Rodríguez, C., Muñoz-Fernandez, C., Dufouil, C., Graff, C., Ferreira, C. B., Chillotti, C., Reynolds, C. A., Fenoglio, C., Van Broeckhoven, C., Clark, C., Pisanu, C., Satizabal, C. L., Holmes, C., Buiza-Rueda, D., Aarsland, D., Rujescu, D., Alcolea, D., Galimberti, D., Wallon, D., Seripa, D., Grünblatt, E., Dardiotis, E., Düzel, E., Scarpini, E., Conti, E., Rubino, E., Gelpi, E., Rodriguez-Rodriguez, E., Duron, E., Boerwinkle, E., Ferri, E., Tagliavini, F., Küçükali, F., Pasquier, F., Sanchez-Garcia, F., Mangialasche, F., Jessen, F., Nicolas, G., Selbæk, G., Ortega, G., Chêne, G., Hadjigeorgiou, G., Rossi, G., Spalletta, G., Giaccone, G., Grande, G., Binetti, G., Papenberg, G., Hampel, H., Bailly, H., Zetterberg, H., Soininen, H., Karlsson, I. K., Alvarez, I., Appollonio, I., Giegling, I., Skoog, I., Saltvedt, I., Rainero, I., Rosas Allende, I., Hort, J., Diehl-Schmid, J., Van Dongen, J., Vidal, J.-S., Lehtisalo, J., Wiltfang, J., Thomassen, J. Q., Kornhuber, J., Haines, J. L., Vogelgsang, J., Pineda, J. A., Fortea, J., Popp, J., Deckert, J., Buerger, K., Morgan, K., Fließbach, K., Sleegers, K., Molina-Porcel, L., Kilander, L., Weinhold, L., Farrer, L. A., Wang, L.-S., Kleineidam, L., Farotti, L., Parnetti, L., Tremolizzo, L., Hausner, L., Benussi, L., Froelich, L., Ikram, M. A., Deniz-Naranjo, M. C., Tsolaki, M., Rosende-Roca, M., Löwenmark, M., Hulsman, M., Spallazzi, M., Pericak-Vance, M. A., Esiri, M., Bernal Sánchez-Arjona, M., Dalmasso, M. C., Martínez-Larrad, M. T., Arcaro, M., Nöthen, M. M., Fernández-Fuertes, M., Dichgans, M., Ingelsson, M., Herrmann, M. J., Scherer, M., Vyhnalek, M., Kosmidis, M. H., Yannakoulia, M., Schmid, M., Ewers, M., Heneka, M. T., Wagner, M., Scamosci, M., Kivipelto, M., Hiltunen, M., Zulaica, M., Alegret, M., Fornage, M., Roberto, N., van Schoor, N. M., Seidu, N. M., Banaj, N., Armstrong, N. J., Scarmeas, N., Scherbaum, N., Goldhardt, O., Hanon, O., Peters, O., Skrobot, O. A., Quenez, O., Lerch, O., Bossù, P., Caffarra, P., Dionigi Rossi, P., Sakka, P., Hoffmann, P., Holmans, P. A., Fischer, P., Riederer, P., Yang, Q., Marshall, R., Kalaria, R. N., Mayeux, R., Vandenberghe, R., Cecchetti, R., Ghidoni, R., Frikke-Schmidt, R., Sorbi, S., Hägg, S., Engelborghs, S., Helisalmi, S., Botne Sando, S., Kern, S., Archetti, S., Boschi, S., Fostinelli, S., Gil, S., Mendoza, S., Mead, S., Ciccone, S., Djurovic, S., Heilmann-Heimbach, S., Riedel-Heller, S., Kuulasmaa, T., del Ser, T., Lebouvier, T., Polak, T., Ngandu, T., Grimmer, T., Bessi, V., Escott-Price, V., Giedraitis, V., Deramecourt, V., Maier, W., Jian, X., Pijnenburg, Y. A. L., Smith, A. D., Saenz, A., Bizzarro, A., Lauria, A., Vacca, A., Solomon, A., Anastasiou, A., Richardson, A., Boland, A., Koivisto, A., Daniele, A., Greco, A., Marianthi, A., McGuinness, B., Fin, B., Ferrari, C., Custodero, C., Ferrarese, C., Ingino, C., Mangone, C., Reyes Toso, C., Martínez, C., Cuesta, C., Muchnik, C., Joachim, C., Ortiz, C., Besse, C., Johansson, C., Zoia, C. P., Laske, C., Anastasiou, C., Palacio, D. L., Politis, D. G., Janowitz, D., Craig, D., Mann, D. M., Neary, D., Jürgen, D., Daian, D., Belezhanska, D., Kohler, E., Castaño, E. M., Koutsouraki, E., Chipi, E., De Roeck, E., Costantini, E., Vardy, E. R. L. C., contributors, E., MacLeod, C., Woods, B. & Windle, G., 7 Jun 2021, In: Nature Communications. 12, 1, 3417.
    Research output: Contribution to journal › Article › peer-review
  • PublishedLiving in a care home during COVID-19: A case study of one person living with dementia
    Davies Abbott, I., Jones, C. H. & Windle, G., 10 Dec 2021, In: Quality in Ageing and Older Adults. 22, 3-4, p. 147-158
    Research output: Contribution to journal › Article › peer-review
  • PublishedRare dementia support in rural and remote areas
    Windle, G., Roberts, J. & Sullivan, M. P., Jan 2021, In: Journal of Dementia Care. 29, 1, p. 22-24
    Research output: Contribution to journal › Article
  • PublishedResilience in Later Life: Responding to Criticisms and Applying New Knowledge to the Experience of Dementia
    Windle, G., 1 Mar 2021, Resilience and Aging. Emerging Science and Future Possibilities. . Wister, A. & Cosco, T. D. (eds.). 1 ed. Switzerland: Springer International Publishing, Vol. 1. p. 31-49 19 p.
    Research output: Chapter in Book/Report/Conference proceeding › Chapter › peer-review

2020

  • PublishedDementia and Imagination: A social return on investment analysis framework for art activities for people living with dementia
    Jones, C., Windle, G. & Edwards, R. T., Feb 2020, In: Gerontologist. 60, 1, p. 112-123
    Research output: Contribution to journal › Article › peer-review
  • PublishedEnhancing communication between dementia care staff and their residents: an arts-inspired intervention
    Windle, G., Algar-Skaife, K., Caulfield, M., Pickering-Jones, L., Killick, J., Zeilig, H. & Tischler, V., 2 Aug 2020, In: Aging and Mental Health. 24, 8, p. 1306-1315 10 p.
    Research output: Contribution to journal › Article › peer-review
  • PublishedEvaluation of an intervention targeting loneliness and isolation for older people in North Wales
    Roberts, J. & Windle, G., 1 May 2020, In: Perspectives in Public Health. 140, 3, p. 153-161
    Research output: Contribution to journal › Article › peer-review
  • PublishedHow Can the Arts Influence the Attitudes of Dementia Caregivers? A Mixed-Methods Longitudinal Investigation
    Windle, G., Woods, B., Caulfield, M. & Joling, K., Sept 2020, In: Gerontologist. 60, 6, p. 1103-1114 12 p.
    Research output: Contribution to journal › Article › peer-review
  • PublishedImplementing Digital Life Story Work for People with Dementia: Relevance of Context to User Experience
    O Philbin, L., Woods, B. & Windle, G., 10 Mar 2020, In: International Journal of Reminiscence and Life Review. 7, 1, p. 22-32
    Research output: Contribution to journal › Article › peer-review
  • PublishedProtocol for the Rare Dementia Support Impact Study: RDS Impact
    Brotherhood, E., Stott, J., Windle, G., Barker, S., Culley, S., Harding, E., Camic, P. M., Caulfield, M., Ezeofor, V., Hoare, Z., McKee-Jackson, R., Roberts, J., Sharp, R., Suarez-Gonzalez, A., Sullivan, M. P., Edwards, R. T., Walton, J., Waddington, C., Winrow, E. & Crutch, S. J., Aug 2020, In: International Journal of Geriatric Psychiatry. 35, 8, p. 833-841 9 p.
    Research output: Contribution to journal › Article › peer-review
  • PublishedResilience in older persons: A systematic review of the conceptual literature
    Angevaare, M. J., Roberts, J., van Hout, H. P. J., Smalbrugge, M., Schoonmade, L. J., Windle, G. & Hertogh, C. M. P. M., Nov 2020, In: Ageing Research Reviews. 63, 101144.
    Research output: Contribution to journal › Article › peer-review
  • PublishedTechnology-Mediated Communication in Familial Relationships: Moderated-Mediation Models of Isolation and Loneliness
    CFAS-Wales study team, 1 Oct 2020, In: Gerontologist. 60, 7, p. 1202-1212 11 p.
    Research output: Contribution to journal › Article › peer-review
  • PublishedThe feasibility of a Comprehensive Resilience-building psychosocial Intervention (CREST) for people with dementia in the community: protocol for a non-randomised feasibility study
    Casey, D., Gallager, N., Devane, D., Woods, B., Murphy, K., Smyth, S., Newell, J., Murphy, A. W., Clarke, C., Foley, T., Timmons , F., Droes, R.-M., O'Halloran, M., Windle, G., Irving Lupton, K., Domegan, C., O'Shea, E., Dolan, P. & Doyle, P., 16 Nov 2020, In: BMC Pilot and Feasibility Studies. 6, 177, p. 1-16 16 p., 6.
    Research output: Contribution to journal › Article › peer-review
  • PublishedThe influence of life experiences on the development of resilience in older people with co-morbid health problems.
    Windle, G., Bennett, K., MacLeod, C. & Wales research team, C., 22 Sept 2020, In: Frontiers in Medicine. 7, 13 p., 502314.
    Research output: Contribution to journal › Article › peer-review
  • PublishedUsing art for public engagement: reflections on the Dementia and Imagination project
    Tischler, V., Howson-Griffiths, T., Jones, C. & Windle, G., 1 Sept 2020, In: Arts & Health. 12, 3, p. 270-277
    Research output: Contribution to journal › Article › peer-review

2019

  • PublishedRe-thinking social exclusion in later life: A case for a new framework for measurement
    MacLeod, C., Ross, A., Sacker, A., Netuveli, G. & Windle, G., Jan 2019, In: Ageing and Society. 39, 1, p. 74-111 38 p.
    Research output: Contribution to journal › Article › peer-review
  • PublishedThe role of the visual arts in the resilience of people living with dementia in care homes
    Newman, A., Goulding, A., Davenport, B. & Windle, G., Nov 2019, In: Ageing and Society. 39, 11, p. 2465-2482
    Research output: Contribution to journal › Article › peer-review

2018

  • PublishedA roadmap to advance dementia research in prevention, diagnosis, intervention, and care by 2025
    Pickett, J., Bird, C., Ballard, C., Banerjee, S., Brayne, C., Gowan, K., Clare, L., Comas-Herrera, A., Corner, L., Daley, S., Knapp, M., Lafortune, L., Livingston, G., Manthorpe, J., Marchant, N., Moriarty, J., Robinson, L., van Lynden, C., Windle, G. & Woods, R. & 2 others, Gray, K. & Walton, C., Jul 2018, In: International Journal of Geriatric Psychiatry. 33, 7, p. 900-906
    Research output: Contribution to journal › Article › peer-review
  • PublishedConceptualising and Understanding Artistic Creativity in the Dementias: Interdisciplinary Approaches to Research and Practise
    Created Out of Mind Team, Camic, P. M., Crutch, S. J., Murphy, C., Firth, N., Harding, E., Harrison, C. R., Howard, S., Strohmaier, S., van Leeuwen, J., West, J., Windle, G., Wray, S. & Zeilig, H., 3 Oct 2018, In: Frontiers in Psychology. 9, p. 1-12 12 p., 1842.
    Research output: Contribution to journal › Article › peer-review
  • PublishedExploring the theoretical foundations of visual art programmes for people living with dementia
    Windle, G., Gregory, S., Howson-Griffiths, T., Newman, A., O'Brien, D. & Goulding, A., 1 Aug 2018, In: Dementia: International Journal of Social Research and Practice. p. 1-20 20 p.
    Research output: Contribution to journal › Article › peer-review
  • PublishedSeeking assistance in later life: How do older people evaluate their need for assistance?
    Canvin, K., MacLeod, C., Windle, G. & Sacker, A., 1 May 2018, In: Age and Ageing. 47, 3, p. 466-473
    Research output: Contribution to journal › Article › peer-review
  • PublishedWhat is the relationship between health and social exclusion in older age?
    Sacker, A., Ross, A., MacLeod, C., Netuveli, G. & Windle, G., 2018, Insights 2018-2019 : Understanding Society Findings Report . Institute for Social and Economic Research, University of Essex, p. 24-25 2 p.
    Research output: Chapter in Book/Report/Conference proceeding › Chapter

2017

  • PublishedA Preventative Lifestyle Intervention for Older Adults (Lifestyle Matters): A Randomised Controlled Trial
    Mountain, G., Windle, G., Hind, D., Walters, S., Keertharuth, A., Chatters, R., Sprange, K., Craig, C., Cook, S., Lee, E., Chater, T., Woods, R., Newbould, L., Powell, L., Shortland, K. & Roberts, J., 25 Feb 2017, In: Age and Ageing. 46, 4, p. 627-634
    Research output: Contribution to journal › Article › peer-review
  • PublishedHealth and social exclusion in older age: Evidence from Understanding Society, the UK Household Longitudinal Study
    Sacker, A., Ross, A., MacLeod, C., Netuveli, G. & Windle, G., Jul 2017, In: Journal of Epidemiology and Community Health. 71, 7, p. 681-690 10 p.
    Research output: Contribution to journal › Article › peer-review
  • PublishedPreparatory planning framework for Created Out of Mind: Shaping perceptions of dementia through art and science
    Brotherhood, E., Ball, P., Camic, P. M., Evans, C., Fox, N., Murphy, C., Walsh, F., West, J., Windle, G., Billiald, S. & Firth, N., 6 Nov 2017, In: Wellcome Open Research. 2, 108, 108.
    Research output: Contribution to journal › Article › peer-review
  • PublishedThe impact of a visual arts program on quality of life, communication and well-being of people living with dementia: A mixed-methods longitudinal investigation
    Windle, G., Joling, K., Howson-Griffiths, T., Woods, R., Jones, C., van der Ven, P., Newman, A. & Parkinson, C., 8 Nov 2017, In: International Psychogeriatrics. p. 1-15 15 p.
    Research output: Contribution to journal › Article › peer-review
  • PublishedThe long-term (24-month) effect on health and well-being of the Lifestyle Matters community-based intervention in people aged 65 years and over: a qualitative study
    Chatters, R., Roberts, J., Mountain, G., Cook, S., Windle, G., Craig, C. & Sprange, K., 24 Sept 2017, In: BMJ Open. 7, 9, p. e016711
    Research output: Contribution to journal › Article › peer-review

2016

  • PublishedAdapting and implementing an observation tool to evaluate if taking part in an art programme is beneficial to people living with dementia.
    Jones, C., Windle, G. & Algar, K., 1 Nov 2016.
    Research output: Contribution to conference › Poster › peer-review
  • PublishedA Social Model of Loneliness: The Roles of Disability, Social Resources and Cognitive Impairment
    Burholt, V., Windle, G. & Morgan, D. J., 10 Nov 2016, In: Gerontologist. 57, 6, p. 1020-1030
    Research output: Contribution to journal › Article › peer-review
  • PublishedCarrying out research across the arts and humanities and social sciences: developing the methodology for Dementia and Imagination
    Newman, A., Baber, M., O'Brien, D., Goulding, A., Jones, C., Howson, T., Jones, C., Parkinson, C., Taylor, K., Tischler, V. & Windle, G., Nov 2016, In: Cultural Trends. 25, 4, p. 218-232 15 p.
    Research output: Contribution to journal › Article › peer-review
  • PublishedDementia and Imagination: A mixed-methods protocol for arts and science research
    Windle, G., Newman, A., Burholt, V., Woods, R., O'Brien, D., Baber, M., Hounsome, B., Parkinson, C. & Tischler, V., 2 Nov 2016, In: BMJ Open. 6, 11, e011634.
    Research output: Contribution to journal › Article › peer-review
  • PublishedDementia and Imagination: Qualitative research findings from an art and dementia study
    Howson, T., Jones, C., Windle, G. & Woods, R., 2 Nov 2016.
    Research output: Contribution to conference › Abstract › peer-review
  • PublishedFactors of resilience in informal caregivers of people with dementia from integrative international data-analysis
    Joling, K. J., Windle, G., Droes, R.-M., Meiland, F., van Hout, H. P. J., MacNeil Vroomen, J., van de Ven, P. M., Moniz-Cook, E. & Woods, R., Oct 2016, In: Dementia and Geriatric Cognitive Disorders. 42, 3-4, p. 198-214 17 p.
    Research output: Contribution to journal › Article › peer-review
  • PublishedIs a Visual Arts Programme Beneficial for the Quality of Life of People Living With Dementia?
    Windle, G., Joling, K., Jones, C., Howson, T. & Woods, R., 16 Nov 2016, The Gerontological Society Conference.
    Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › peer-review
  • Published“I thought you’d be wasting your time, if I’m honest”: A qualitative exploration of the impact of a visual art programme for care home residents with dementia
    Algar, K., Woods, R. & Windle, G., 31 Oct 2016.
    Research output: Contribution to conference › Poster › peer-review
  • PublishedMeasuring Later Life Social Exclusion in Understanding Society
    MacLeod, C., Ross, A., Windle, G., Netuveli, G. & Sacker, A., 27 Jun 2016, The International Centre for Lifecourse Studies in Society and Health (ICLS): University College London, p. 1-14, 14 p.
    Research output: Working paper

2015

  • UnpublishedLifestyle matters: promoting health and mental wellbeing in people aged 65 years and over
    Mountain, G., Windle, G. & Sprange, K., 2015, (Unpublished) In: British Journal of Occupational Therapy. 77, p. 68
    Research output: Contribution to journal › Article › peer-review
  • PublishedPsychological Resilience: An Important Resource in Later Life?
    Windle, G., 13 Oct 2015.
    Research output: Contribution to conference › Paper
  • PublishedThe importance of not only individual, but also community and society factors in resilience in later life
    Bennett, K. M. & Windle, G., 2 Sept 2015, In: Behavioral and Brain Sciences. 38, 2 p., e94.
    Research output: Contribution to journal › Article › peer-review
  • PublishedThe role of aesthetics in improving the quality of health-care
    Windle, G., 11 Mar 2015.
    Research output: Contribution to conference › Paper
  • PublishedUnderstanding resilience in later life: Some conceptual and methodological challenges
    Windle, G., 23 Apr 2015.
    Research output: Contribution to conference › Paper
  • PublishedWe all grow older! Resilience in later life
    Windle, G., 21 May 2015.
    Research output: Contribution to conference › Paper
  • PublishedWhat are the essential features of resilience for informal caregivers of people living with dementia? A Delphi consensus examination
    Joling, K. J., Windle, G., Droes, R. M., Huisman, M., Hertogh, C. & Woods, R. T., 21 Dec 2015, In: Aging and Mental Health.
    Research output: Contribution to journal › Article › peer-review

2014

  • PublishedDementia and Imagination
    Windle, G., 4 Jun 2014.
    Research output: Contribution to conference › Paper
  • PublishedDeveloping a visual arts intervention
    Windle, G., 1 Sept 2014.
    Research output: Contribution to conference › Paper
  • PublishedDo Social Resources Explain the Relationship Between Optimism and Life Satisfaction in Community-Dwelling Older People? Testing a Multiple Mediation Model
    Dumitrache, C. G., Windle, G. & Herrera, R. R., 24 Apr 2014, In: Journal of Happiness Studies. 16, 3, p. 633-654
    Research output: Contribution to journal › Article › peer-review
  • PublishedExercise. physical activity and mental well-being in later life
    Windle, G., 19 Nov 2014, In: Reviews in Clinical Psychology. 24, 4, p. 319-325
    Research output: Contribution to journal › Article › peer-review
  • PublishedExploring life experiences, use of resources and their relation resilience in older people with ill-health and mobility restrictions
    Windle, G., 5 Nov 2014.
    Research output: Contribution to conference › Paper
  • PublishedIs it worth taking the trouble to study resilience?
    Windle, G., 1 Apr 2014.
    Research output: Contribution to conference › Paper
  • PublishedLifestyle Matters for Depression: A feasibility Study
    Windle, G., 6 May 2014.
    Research output: Contribution to conference › Paper
  • PublishedMeasuring the quality of life and well-being of people with dementia: A review of observational measures
    Algar, K. H., Woods, R. T. & Windle, G., 24 Jun 2014, In: Dementia: the international journal of social research and practice.
    Research output: Contribution to journal › Article › peer-review
  • PublishedSocial return on investment analysis of an art group for people with dementia
    Jones, C. L., Edwards, R. T. & Windle, G., 19 Nov 2014, In: The Lancet. 384, 2, p. S43
    Research output: Contribution to journal › Meeting Abstract › peer-review
  • PublishedUnderstanding the impact of visual arts interventions for people living with dementia: a realist review protocol
    Windle, G., Gregory, S., Newman, A., Goulding, A., O'Brien, D. & Parkinson, C., 15 Aug 2014, In: BMC Systematic Reviews. 3, 91
    Research output: Contribution to journal › Article › peer-review

2013

  • PublishedHow do earlier life experiences impact on the development of resilience in later life? Preliminary findings from CFAS Wales
    Windle, G., 25 Jun 2013.
    Research output: Contribution to conference › Paper
  • PublishedLifestyle Matters for maintenance of health and wellbeing in people aged 65 years and over: study protocol for a randomised controlled trial
    Sprange, K., Mountain, G. A., Brazier, J., Cook, S. P., Craig, C., Hind, D., Walters, S. J., Windle, G., Woods, R. T., Keetharuth, A. D., Chater, T. & Horner, K., 12 Sept 2013, In: Trials. 14, 302, p. 1-13
    Research output: Contribution to journal › Article › peer-review
  • PublishedLost in art too: challenging perceptions of dementia
    Gregory, S. & Windle, G., 1 Jan 2013, In: Journal of Dementia Care. 21, 5, p. 23-25
    Research output: Contribution to journal › Article › peer-review

2012

  • PublishedA short measure of quality of life in older age: The performance of the brief Older People's Quality of Life questionnaire (OPQOL-brief)
    Bowling, A., Hankins, M., Windle, G., Bilotta, C. & Grant, R., 18 Sept 2012, In: Archives of Gerontology and Geriatrics. 56, 1, p. 181-187
    Research output: Contribution to journal › Article › peer-review
  • PublishedCaring relationships: How to promte resilience in challenging times
    Windle, G., Bennett, K. M. & Unger, M. (Editor), 1 Jan 2012, The Sociol Ecology of Resilience: A Handbook of Theory and Practice. 2012 ed. Springer, p. 219-232
    Research output: Chapter in Book/Report/Conference proceeding › Chapter
  • PublishedParticipation in community arts for health and well-being of people with dementia, their carers, and the communities in which they live – implications for research, policy and practice
    Windle, G., 11 Jul 2012.
    Research output: Contribution to conference › Paper
  • PublishedThe contribution of resilience to healthy ageing
    Windle, G., 1 Jul 2012, In: Perspectives in Public Health. 132, 4, p. 159-160
    Research output: Contribution to journal › Article › peer-review

2011

  • PublishedA methodological review of resilience measurement scales.
    Windle, G., Bennett, K. M. & Noyes, J., 4 Feb 2011, In: Health and Quality of Life Outcomes. 9, 1, p. 8
    Research output: Contribution to journal › Article › peer-review
  • PublishedArts programmes and quality of life for people with dementia - a review. Do we know enough about the potential of visual art programmes to increase the quality of life and well being of people with dementia?
    Salisbury, K., Algar, K. & Windle, G., May 2011, In: Journal of Dementia Care. 19, 3, p. 33-37 5 p.
    Research output: Contribution to journal › Article
  • PublishedPsychological resilience in later life
    Windle, G., 18 Nov 2011.
    Research output: Contribution to conference › Paper

2010

  • PublishedA methodological review of resilience measurement scales.
    Windle, G., Bennett, K. & Noyes, J., 8 Jun 2010.
    Research output: Contribution to conference › Paper
  • PublishedA Mixed-Methods Approach to Synthesising Resilience Research: Definition, Measurement and Gaps in the Evidence.
    Windle, G., 19 Nov 2010.
    Research output: Contribution to conference › Paper
  • PublishedDo we know enough about the contribution of telecare to the quality of life and well-being of people with dementia?
    Windle, G., 1 Sept 2010, In: Journal of Dementia Care. 18, 5, p. 33-36
    Research output: Contribution to journal › Article › peer-review
  • PublishedIs exercise effective in promoting mental well-being in older age? A systematic review.
    Hughes, D., Linck, P. G., Windle, G., Hughes, D. A., Linck, P., Russell, I. T. & Woods, R. T., 1 Aug 2010, In: Aging and Mental Health. 14, 6, p. 652-669
    Research output: Contribution to journal › Article › peer-review
  • PublishedLiving with Ill-Health in Older Age: The Role of a Resilient Personality
    Markland, D. A., Windle, G., Woods, R. T. & Markland, D., 1 Dec 2010, In: Journal of Happiness Studies. 11, 6, p. 763-777
    Research output: Contribution to journal › Article › peer-review
  • PublishedResilience research: consolidating 20 years of evidence.
    Windle, G., 7 Jul 2010.
    Research output: Contribution to conference › Paper
  • PublishedThe resilience and healthy ageing research network: An overview.
    Windle, G., 7 Jun 2010.
    Research output: Contribution to conference › Paper
  • PublishedTraining older volunteers in gerontological research in the United Kingdon: moving towards a Andragogical and Emancipatory agenda.
    Burholt, V., Nash, P., Naylor, D. & Windle, G., 1 Sept 2010, In: Educational Gerontology. 36, 9, p. 753-780
    Research output: Contribution to journal › Article › peer-review
  • PublishedWhat is resilience? A review and concept analysis.
    Windle, G., 21 Dec 2010, In: Reviews in Clinical Gerontology.
    Research output: Contribution to journal › Article › peer-review

2009

  • PublishedDignity in Care Homes.
    Windle, G., 15 Oct 2009.
    Research output: Contribution to conference › Paper
  • PublishedIs exercise effective in promoting mental well-being at 65?
    Windle, G., 7 Jul 2009.
    Research output: Contribution to conference › Paper
  • PublishedMedical Research Council Network. Challenges and healthy ageing: the role of resilience across the life course
    Windle, G., 1 Jul 2009, In: Generations Review. 19, 3
    Research output: Contribution to journal › Article › peer-review
  • PublishedVariations in Well-being: Psychological Resilience in Later Life: An examination of the interplay between personalityand some of the challenges associated with older age
    Windle, G., 1 Jan 2009, VDM Verlag Dr. Muller Aktiengesellschaft & Co.
    Research output: Book/Report › Book
  • PublishedWhat is mental health and mental well-being?
    Windle, G. & Cattan, M. (Editor), 1 Jan 2009, Mental Health and Well-Being in Later Life. 2009 ed. Open University Press, p. 9-29
    Research output: Chapter in Book/Report/Conference proceeding › Chapter

2008

  • PublishedExamination of a theoretical model of psychological resilience in older age.
    Windle, G., Markland, D. A. & Woods, R. T., 1 May 2008, In: Aging and Mental Health. 12, 3, p. 285-292
    Research output: Contribution to journal › Article › peer-review
  • PublishedNEURODEM Cymru: The Welsh Portfolio of Research.
    Windle, G., 4 Jul 2008.
    Research output: Contribution to conference › Paper
  • PublishedPolicy for Older People in Wales
    Windle, G., Porter, A., Maltby, T. (Editor), Kennett, P. (Editor) & Rummery, K. (Editor), 1 Jan 2008, Social Policy Review: Analysis and Debate in Social Policy: 2008 (Social Policy Review Series): 20. 2008 ed. Policy Press, p. 93-110
    Research output: Chapter in Book/Report/Conference proceeding › Chapter
  • PublishedPromoting mental well-being at 65+.
    Windle, G., 24 Jul 2008.
    Research output: Contribution to conference › Paper
  • PublishedPublic health interventions promote mental well-being in people aged 65 and over: systematic review of effectiveness and cost-effectiveness.
    Windle, G., Hughes, D. A., Linck, P., Russell, I. T., Morgan, R., Woods, R. T., Burholt, V., Reeves, C., Yeo, S. T. & Edwards, R. T., 1 Jan 2008, 2008 ed. Unknown.
    Research output: Book/Report › Commissioned report
  • PublishedPublic health interventions to promote well-being in people aged 65 and over: systematic review of effectiveness and cost-effectiveness: Evidence Tables.
    Hughes, D., Linck, P. G., Windle, G., Linck, P., Morgan, R., Hughes, D. A., Burholt, V., Reeves, C., Yeo, S. T., Woods, R. T., Edwards, R. T. & Russell, I. T., 1 Jan 2008, 2008 ed. Unknown.
    Research output: Book/Report › Commissioned report
  • PublishedThe Effects of Ageing on Personality
    Woods, R. T., Windle, G., Jacoby, R. (Editor), Oppenheimer, C. (Editor), Dening, T. (Editor) & Thomas, A. (Editor), 1 Jan 2008, The Oxford Textbook of Old Age Psychiatry. 2008 ed. Oxford University Press, p. 591-604
    Research output: Chapter in Book/Report/Conference proceeding › Chapter

2007

  • PublishedLife activities and well-being.
    Windle, G., 5 Jul 2007.
    Research output: Contribution to conference › Paper
  • PublishedLooking to the future: Ageing in Rural Communities.
    Burholt, V., Windle, G., Naylor, D., Jones, B., Riley, B., Oades, J., Oades, R., Humphries, C., Kennedy, D. & Clifford-Jones, J., 1 Jan 2007, 2007 ed. Centre for Policy Research and Development, The Institute of Medical and Social Care Research, University of Wales, Bangor.
    Research output: Book/Report › Commissioned report
  • PublishedLooking to the Future: Ageing in Rural Communities: A report on the Rural North Wales Initiative for the Development of Support for Older People
    Burholt, V., Windle, G., Naylor, D. M., Jones, B., Riley, B., Oades, J., Oades, R., Humphries, C., Kennedy, D. & Clifford-Jones, J., 1 Aug 2007, Bangor: Centre for Social Policy Research and Development. 206 p.
    Research output: Book/Report › Book
  • PublishedReliability and validity of the Older Americans Resources and Services (OARS) social resources scale in six European countries.
    Burholt, V., Windle, G., Ferring, D., Balducci, C., Fagerstrom, C., Thissen, F., Weber, G. & Wenger, G. C., 1 Dec 2007, In: Journal of Gerontology Series B: Psychological Sciences and Social Sciences. 62B, 6, p. S371 - S379
    Research output: Contribution to journal › Article › peer-review
  • PublishedRetaining independence and autonomy: older people’s references for specialised housing
    Burholt, V. & Windle, G., 1 Jan 2007, In: Research, Policy, and Planning. 25, 1, p. 13-26
    Research output: Contribution to journal › Article › peer-review

2006

  • PublishedHousing related difficulties, housing tenure and variations in health status: evidence from older people in Wales
    Windle, G., Burholt, V. & Edwards, R. T., 1 Sept 2006, In: Health and Place. 12, 3, p. 267-278
    Research output: Contribution to journal › Article › peer-review
  • PublishedHow might loss of independence in activities of daily living affect subjective well-being?
    Windle, G., 7 Sept 2006.
    Research output: Contribution to conference › Paper
  • PublishedKeeping warm? Self-reported housing and home energy efficiency factors impacting on older people heating homes in North Wales
    Burholt, V. & Windle, G., 1 Jul 2006, In: Energy Policy. 34, 10, p. 1198-1208
    Research output: Contribution to journal › Article › peer-review
  • PublishedThe Material Resources and Well-being of Older People.
    Burholt, V. & Windle, G., 1 Jan 2006, 2006 ed. Joseph Rowntree Foundation.
    Research output: Book/Report › Commissioned report

2005

  • PublishedA profile of the prevalence of depressive type symptoms and use of psychotropic medication in Europe.
    Windle, G., 26 Jun 2005.
    Research output: Contribution to conference › Paper
  • PublishedPromoting the sexual health of older people. Report to the Welsh Assembly Government.
    Windle, G. & Burholt, V., 1 Jan 2005, 2005 ed. Centre for Policy Research and Development, The Institute of Medical and Social Care Research, University of Wales, Bangor.
    Research output: Book/Report › Commissioned report
  • PublishedThe effects of psychological resources on the relationship between chronic illness and subjective well-being.
    Windle, G., 14 Jul 2005.
    Research output: Contribution to conference › Paper
  • PublishedThe self and Ageing: the role of psychological resources.
    Windle, G., 26 Jun 2005.
    Research output: Contribution to conference › Paper

2004

  • PublishedA concise alternative for researching health related quality of life in older people.
    Windle, G., Edwards, R. & Burholt, V., 1 Nov 2004, In: Quality in Ageing: Policy, Practice and Research. 5, 3, p. 13-24
    Research output: Contribution to journal › Article › peer-review
  • PublishedMental health and growing older: a cross-national study.
    Windle, G., 7 Sept 2004.
    Research output: Contribution to conference › Paper
  • PublishedSubjective well-being in older age: Maintaining mental wellness.
    Windle, G., 1 Jan 2004, In: Signpost. 9, 2, p. 25-27
    Research output: Contribution to journal › Article › peer-review
  • PublishedTransport in Rural Wales.
    Windle, G., 1 Jun 2004, In: Working with Older People. 8, 2, p. 32-35
    Research output: Contribution to journal › Article › peer-review
  • PublishedVariations in subjective wellbeing: the mediating role of a psychological resource.
    Windle, G. & Woods, R. T., 1 Jul 2004, In: Ageing and Society. 24, 4, p. 583-602
    Research output: Contribution to journal › Article › peer-review

2003

  • PublishedA matter of preference.
    Burholt, V. & Windle, G., 1 Dec 2003, In: Professional Social Work. p. 18-19
    Research output: Contribution to journal › Article › peer-review
  • PublishedComparative report on physical health and functional status.
    Ferring, D., Hallberg, I. R., Windle, G., Heiss, C., Paulsson, C., Spazzafumo, L., Borg, C., Van Der Meer, M., Hofman, M. & Petit, C., 1 Jan 2003, 2003 ed. Unknown.
    Research output: Book/Report › Commissioned report
  • PublishedHousing for An Ageing Population: Planning Implications.
    Burholt, V. & Windle, G., 1 Jan 2003, 2003 ed. Centre for Policy Research and Development, The Institute of Medical and Social Care Research, University of Wales, Bangor.
    Research output: Book/Report › Commissioned report
  • PublishedHousing, Health and Service Use: Evidence from Wales.
    Windle, G., Edwards, R. T. & Burholt, V., 14 Sept 2003.
    Research output: Contribution to conference › Paper
  • PublishedOlder People in Wales, their transport and mobility; A Literature Review.
    Windle, G. & Burholt, V., 1 Aug 2003, In: Quality in Ageing: Policy, Practice and Research. 4, 2, p. 28-35
    Research output: Contribution to journal › Article › peer-review
  • PublishedPromotion for Older People. Technical Report 2.
    Windle, G., Parsonage, R., Burholt, V., Prendergast, L., Woods, B., Squire, A. & Wenger, G. C., 1 Jan 2003, 2003 ed. Research and Evaluation Branch, Health Promotion Division, Office of the Chief Medical Officer.
    Research output: Book/Report › Commissioned report
  • PublishedResilience in Older Age.
    Windle, G., 5 Jul 2003.
    Research output: Contribution to conference › Paper

2002

  • PublishedMood, eating behaviour and attention.
    Williams, J. M., Healy, H., Eade, J., Windle, G., Cowen, P. J., Green, M. W. & Durlach, P., 1 Apr 2002, In: Psychological Medicine. 32, 3, p. 469-481
    Research output: Contribution to journal › Article › peer-review
  • PublishedPredictors of subjective well-being in community dwelling older people: The role of environmental mastery.
    Windle, G., 14 Sept 2002.
    Research output: Contribution to conference › Paper
  • PublishedPromoting the health and well-being of disadvantaged groups in Wales. A review of the published literature.
    Hill, J., Windle, G., Williams, L. & Parsonage, R., 1 Jan 2002, 2002 ed. Centre for Policy Research and Development, The Institute of Medical and Social Care Research, University of Wales, Bangor.
    Research output: Book/Report › Commissioned report

2001

  • PublishedLiterature review for the strategy for older people: Health and Social care.
    Burholt, V. & Windle, G., 1 Jan 2001, 2001 ed. Centre for Policy Research and Development, The Institute of Medical and Social Care Research, University of Wales, Bangor.
    Research output: Book/Report › Commissioned report
  • PublishedLiterature review for the strategy for older people in Wales: Examples of Good Practice.
    Windle, G. & Burholt, V., 1 Jan 2001, 2001 ed. Centre for Policy Research and Development, The Institute of Medical and Social Care Research, University of Wales, Bangor.
    Research output: Book/Report › Commissioned report
  • PublishedLiterature review for the strategy for older people in Wales: Housing services for older people.
    Burholt, V. & Windle, G., 1 Jan 2001, 2001 ed. The Centre for Social Policy Research and Development, The Institute of Medical and Social Care Research, University of Wales, Bangor.
    Research output: Book/Report › Commissioned report
  • PublishedLiterature review for the strategy for older people in Wales: Lifelong learning and employment for older people.
    Burholt, V. & Windle, G., 1 Jan 2001, 2001 ed. The Centre for Social Policy Research and Development, The Institute of Medical and Social Care Research, University of Wales, Bangor.
    Research output: Book/Report › Commissioned report
  • PublishedLiterature review for the strategy for older people in Wales: Social Inclusion for older people.
    Burholt, V. & Windle, G., 1 Jan 2001, 2001 ed. The Centre for Social Policy Research and Development, The Institute of Medical and Social Care Research, University of Wales, Bangor.
    Research output: Book/Report › Commissioned report
  • PublishedLiterature review for the strategy for older people in Wales: Transport, Access, Mobility and Rural Living.
    Windle, G. & Burholt, V., 1 Jan 2001, 2001 ed. Centre for Policy Research and Development, The Institute of Medical and Social Care Research, University of Wales, Bangor.
    Research output: Book/Report › Commissioned report

Activities

2025

  • Alzheimer's Society Grant Advisory Board Member

    Alzheimer's Society Grant Advisory Board Member

    30 Apr 2025 →

    Activity: Types of External academic engagement - Contribution to the work of national or international committees and working groups (Contributor)
  • The importance of unpaid carers to health and social care delivery.

    A seminar delivered by DSDC in the School of Health Sciences, presenting some of the latest research which focusses on supporting unpaid carers. The programme contained:

    • Welcome and introduction to the seminar –Professor Gill Windle, Director of DSDC and Director of Research Impact, School of Health Sciences.

    • Willingness to care: what is it and does it matter? – Professor Val Morrison, School of Psychology and Sports Sciences.

    • Short Breaks: What a Difference a Break Makes – Dr Diane Seddon, Reader in Social Care and Director of Research, School of Health Sciences.

    • Sustaining couplehood in the face of dementia – Marine Markaryan, visiting PhD student, Maastricht University, The Netherlands.

    10 Mar 2025

    Activity: Participation in Academic workshop, seminar, course (Speaker)

2024

  • Wales Dementia Conference 2024: A Collaborative Success for a Better Future in Dementia Care

    The Dementia Services Development Centre (DSDC) successfully hosted the Wales Dementia Conference 2024 in Deganwy as part of the 25th anniversary of the DSDC celebrations.

    Over 90 delegates from across Wales engaged in discussions about the future of dementia care and support. The conference brought together people living with dementia, carers, researchers, health and care professionals, emphasising the importance of collaboration in shaping better care.

    A key highlight of the day was the launch of the Knowledge is Power for Carers booklet, a resource created by carers for carers, supported by DSDC researchers, available in both Welsh and English. This essential guide provides crucial information to those supporting individuals living with dementia and was well-received by attendees.

    A diverse range of presenters delivered insightful talks, including the Welsh Ambulance Trust, NHS, Dementia Hub Swansea, with people living with dementia and their carers sharing their experiences throughout the day while attendees contributed to discussions on improving dementia services. The bilingual conference ensured accessibility, with simultaneous translation headsets provided for participants.

    Gill Windle, Professor of Ageing and Dementia Research, said, “This was another excellent event designed and delivered by the DSDC team. Feedback from delegates indicates they enjoyed the wide variety of presentations where we heard about excellent service innovations such as transforming ambulances, using national museums to support wellbeing, understanding a person’s life story to enable people in care homes to eat and drink well, the importance of the Welsh language in dementia care, the benefits of arts activities and movement to music, which included all the delegates taking part in a reviving session led by Gwynedd Council’s Dementia Actif team. We heard throughout the day from people with dementia and their carers about their experiences, including Bangor’s own Caban Group, which delegates found especially important. It was also a great opportunity to share our latest research and all the different products our work has inspired.”

    The Knowledge is Power booklet will soon be available on the DSDC website. For hard copies please contact Dr. Jen Roberts: j.roberts@bangor.ac.uk

    18 Sep 2024

    Links:

    • https://sway.cloud.microsoft/09LpD5pv5roEjQGJ
    Activity: Types of Public engagement and outreach - Public lecture/debate/seminar (Contributor)

2023

  • Developing bi-lingual peer guides to living with dementia: the Knowledge is Power series

    A diagnosis of dementia can be life-altering with post-diagnosis support advice often described as overwhelming or lacking. Recent research on resilience suggests that a sense of purpose and peer support contribute to a strengths-based approach. The Knowledge is Power series developed from discussions within a peer group of dementia advocates and educators working together to share important information and useful adaptations for people following a diagnosis of dementia to maintain or explore new interests. Human-centered design principles informed the creative process adopting four phases to Discover, Define, Develop, and Deliver the booklets. Members of Dementia Engagement and Empowerment Project (DEEP) groups across Wales were invited to suggest the content based on their own experiences and were instrumental in the booklet design and promotion. Academics and Graphic designers helped to format, translate, and distribute the booklets. Hard copies and online versions of the first bilingual Knowledge is Power 1 booklet in Wales (Welsh and English) have been distributed to health and social care practitioners, third-sector organisations, and members living with dementia. The second edition, “Knowledge is Power 2: Handy and helpful tips for day-to-day life with dementia” was completed in 2022. Feedback from the first edition informed a revised edition in 2023 with increasing demand for copies. A bilingual (Scottish Gaelic and English) booklet was subsequently created in Scotland highlighting the importance of providing information that is accessible and respects people's native language. Information on the process and feedback will be shared to support others that may wish to develop national post-diagnosis resources. This contributes to the process of co-creating support with rather than for people living with dementia.

    18 Oct 2023

    Links:

    • https://www.alzheimer-europe.org/Conferences/2023-Helsinki
    Activity: Oral presentation (Speaker)
  • Alzheimer's Europe- New opportunities in dementia care, policy and research

    Development of a new outcome measure of resilience for people living with dementia

    16 Oct 2023 – 18 Oct 2023

    Activity: Participation in Academic conference (Speaker)
  • An online resource for self-care and learning: iSupport for dementia carers

    Talk given at conference: Bangor University are undertaking the first UK evaluation of ‘iSupport’, a resource designed by the World Health Organisation to help dementia carers. This session will also describe adaptations of iSupport for young carers, carers of people with rarer dementias and South Asian carers

    12 Oct 2023

    Links:

    • https://nscc.cymru/
    Activity: Invited talk (Speaker)
  • Gill Windle contributed to ‘Extending the Benefits of Healthy Ageing across the Life-Course', a new framework under development by the World Health Organisation.

    5 Oct 2023 – 1 Nov 2023

    Activity: Types of External academic engagement - Contribution to the work of national or international committees and working groups (Contributor)
  • BU-IIA Funded Project: iSupport Young Carers as a driver of change in how we support young people living in families affected by dementia

    iSupport for Young Carers (iSupport YC) is the only online interactive support tool for young dementia carers in the world. We propose a plan of work that will allow this innovation to be rolled out and implemented across health, social, charity and education sectors in 1. Wales and the UK, and 2. In Brazil and Spain.

    Funding awarded through the Bangor University Innovation and Impact Award (Research Wales Innovation Funding). Value = £33,956

    1 Aug 2023 – 31 Jul 2024

    Activity: Other (Contributor)
  • An online resource for self-care and learning: iSupport for dementia carers

    13 Jun 2023

    Links:

    • https://healthandcareresearchwales.org/about/events/social-care-roadshow
    Activity: Invited talk (Speaker)
  • UKRI MRC Ageing Research Development Awards Funding Panel (External organisation)

    Assessment panel member

    1 May 2023 – 13 Jun 2023

    Links:

    • https://www.ukri.org/opportunity/ageing-research-development-awards/
    Activity: Membership of committee (Chair)
  • Update on dementia research and practice in Wales

    Talk at BGS 2023 Wales Spring Meeting

    24 Mar 2023

    Activity: Invited talk (Speaker)
  • Resilience in older adults: more than meets the eye

    PhD committee member at the public defence

    16 Mar 2023

    Activity: Examination (Examiner)
  • Supporting the resilience of people living with dementia

    Invited talk as part of a research exchange 'resilience in older adults'.

    16 Mar 2023

    Activity: Invited talk (Speaker)

2022

  • Supporting People Living with a Rare Dementia

    DSDC Wales Research Centre organised and delivered yet another fantastic event for people living with dementia, their carers and health and care professionals. Fifty-two CPD certificates were issued following the event. Delegates reported being more informed about rare dementias and the support available following our research and lived experience presentations.

    28 Oct 2022

    Activity: Participation in Academic conference (Speaker)
  • New seminar series between The Center of Excellence for the Hill Tribe Health Research (CEHR), Thiland and Ageing and Dementia @ Bangor / DSDC

    12 Oct 2022 →

    Links:

    • https://en.mfu.ac.th/en-quick-menu/research-and-innovation/research-for-u/center/the-center-of-excellence-for-the-hill-tribe-health-research-cehr.html
    Activity: Types of External academic engagement - Contribution to the work of national or international committees and working groups (Contributor)
  • Resilience in Older Adults: More Than Meets the Eye. A conceptual & empirical exploration of resilience in older adults

    PhD doctoral committee member.

    9 Oct 2022 – 4 Nov 2022

    Activity: Examination (Examiner)
  • World Health Organization (External organisation)

    Advisory group member of the WHO Global Network on Long Term Care

    15 Sep 2022 →

    Links:

    • https://www.who.int/groups/global-network-on-long-term-care
    Activity: Membership of network (Member)
  • Collaboration in Practice: Working Across Sectors

    Gill Windle was invited to present at a Welsh Crucible workshop and used one of her REF 2022 impact case study projects ‘Dementia and Imagination’ to illustrate how research impact can be generated. Welsh Crucible is a programme of personal and professional development for future research leaders in Wales https://welshcrucible.org.uk/

    24 Jun 2022

    Activity: Invited talk (Speaker)
  • The interconnections between rurality, dementia and service provision.

    Presentation to the Alzheimer's Cymru annual conference, Wrexham, 7th June 2022.

    7 Jun 2022

    Activity: Invited talk (Speaker)

2021

  • Working together under the OneHealth approach

    Interdisciplinary workshops - Global Challenges Research Fund

    Working together under the OneHealth approach

    The overall aim of these workshops was for them to act as a path to establish collaborative interdisciplinary research working groups under the WHO One Health approach. More specifically these workshops aimed to:

    - Be an opportunity to share knowledge/expertise between the UK and Brazilian researchers already working in this interdisciplinary area (environment-art-health).

    - Identify research links to the OneHealth agenda, closely linked to addressing key Sustainable Development Goals (SDG’s) (SDG3, Good Health and Well-being; SDG10, Reduced Inequality; SDG11, Sustainable Cities and Communities; SDG14 Life underwater)

    - Develop a pathway for future collaborations under the OneHealth/Agenda 2030 global agendas.

    1 May 2021 – 15 Jun 2021

    Activity: Participation in Academic workshop, seminar, course (Member of programme committee)
  • North Wales Social Care and Wellbeing Service Improvement Collaborative (External organisation)

    Member of the North Wales Dementia Strategy Steering Group

    2021 – 2022

    Activity: Membership of committee (Member)
  • Social Care Wales (External organisation)

    Member of working group (dementia care learning and development)

    2021 – 2022

    Activity: Membership of committee (Member)
  • UKRI ESRC Inclusive Ageing Funding Committee (External organisation)

    Funding committee member

    2021 – 2022

    Activity: Membership of committee (Member)
  • Welsh Government (External organisation)

    Working group: implementation of the dementia care standards

    2021 – 2022

    Activity: Membership of committee (Member)
  • World Health Organization (External organisation)

    Member of World Health Organisation iSupport for dementia carers international network.

    2021 →

    Activity: Membership of network (Chair)

2020

  • World Health Organisation iSupport webinar

    Panellist at a World Health Organisation international webinar discussing the global development, implementation and research of iSupport for Dementia Carers.

    3 Dec 2020

    Activity: Invited talk (Invited speaker)
  • Thesis title: Acceptability and feasibility of a person-centred, therapeutic visual art intervention for people with dementia

    24 Apr 2020

    Activity: Examination (Examiner)
  • UKRI ISCF Healthy Ageing (Social, Behavioural and Design Research Programme) (External organisation)

    Member of funding committee

    2020 – 2021

    Activity: Membership of committee (Member)

2019

  • Resilience in later life: metaphor and myth or real and measurable?

    Keynote lecture.

    10 Jul 2019

    Activity: Invited talk (Keynote speaker)
  • Resilience in later life

    Plenary address

    11 Jun 2019

    Links:

    • https://www.sfu.ca/grc/events/friesen/2019.html
    Activity: Invited talk (Invited speaker)
  • Thesis title: Experiences of end of life care from the perspective of older patients and bereaved carers

    13 May 2019

    Activity: Examination (Examiner)

2018

  • The arts for enhancing practice in the dementia care workforce

    18 Oct 2018

    Activity: Oral presentation (Speaker)
  • Welsh Government (External organisation)

    Academic member (research) to the Dementia Strategy Oversight and Implementation Group (current)

    1 Aug 2018 – 31 Dec 2024

    Activity: Membership of board (Member)
  • Vrije Universiteit Amsterdam

    Collaboration with EGMO+ medical center, Vu University, Amsterdam on resilience research

    15 Jun 2018 – 19 Jun 2018

    Activity: Visiting an external academic institution (Visiting researcher)
  • Dementia in the asylum

    Dementia in the asylum

    https://wellcomecollection.org/events/dementia-asylum

    This is a workshop that I organised as part of my role with 'Created out of Mind' at the Wellcome Collection.

    2 Jan 2018

    Activity: Participation in Academic workshop, seminar, course (Speaker)

2017

  • Creative Economies Healthcare Hub (Event)

    Advisory group member to the AHRC funded project ‘Co-Designing a Creative Economy Healthcare Hub’ I provide expertise around arts and health research applied to dementia care.

    1 Sep 2017 – 22 Dec 2017

    Activity: Membership of committee (Member)
  • Measuring well-being in arts and dementia research

    [Delivered as part of the 1st International Arts & Dementia Research Conference, Royal Society for Public Health.] This workshop introduced delegates to the method of structured observation. This does not rely on the people living with dementia, their carers or indeed the researcher, to recall feelings and details, and enables a way of quantitately capturing 'in the moment' reactions that might otherwise be overlooked, or prove difficult to articulate.

    10 Mar 2017

    Activity: Invited talk (Invited speaker)
  • Alzheimer's Society London (External organisation)

    Member of the Alzheimer’s Society's taskforce identifying the research priorities and developing the future strategy for dementia research in the UK and beyond.

    1 Jan 2017 – 30 Nov 2017

    Activity: Membership of committee (Member)

2016

  • Welsh Government (External organisation)

    Academic member of the Welsh Government Task and Finish Group, developing the Dementia Strategy for Wales.

    1 Oct 2016 – 14 Feb 2018

    Activity: Membership of committee (Member)
  • ESRC Peer Review College (External organisation)

    Member of the ESRC Peer Review College, tasked with reviewing research funding applications.

    15 Sep 2016 →

    Activity: Membership of committee (Chair)
  • Economic and Social Research Council (ESRC) (External organisation)

    Member of peer review college, reviewing grants submitted to the ESRC for funding.

    2016 →

    Activity: Membership of committee (Member)

2014

  • National Institute for Health and Clinical Excellence, (NICE) (External organisation)

    Member of advisory group for updating guidance on interventions to promote mental wellbeing in later life (I led the systematic review that informed the initial guidance).

    2014

    Activity: Membership of committee (Member)

2013

  • Supporting the resilience of people living with dementia

    An invited talk as part of a research exchange on 'resilience in older adults', Amsterdam University Medical Centre.

    16 Mar 2013

    Activity: Invited talk (Speaker)

2011

  • Welsh Assembly Givernment (External organisation)

    Member of Task and Finish group for the Blue Badge Scheme

    2011 – 2012

    Activity: Membership of committee (Member)

2007

  • Creating a dementia inclusive Wales(I led the organisation of the scientific content and led two workshops on the day (Dementia in the Asylum and Resilience and Dementia).

    31 Mar 2007

    Activity: Participation in Academic conference (Speaker)

2006

  • Welsh Assembly (External organisation)

    Secondment to Welsh Assembly; Member of Task and Finish Group, developing phase 2 of the Strategy for Older People in Wales

    2006 – 2007

    Activity: Membership of committee (Member)

Projects

  • An approach for dementia care practitioners to support carers and people with dementia (scoping study)

    01/01/2023 – 22/08/2023 (Finished)

  • An approach for dementia care practitioners to support carers and people with dementia (scoping study)

    01/01/2023 – 22/08/2023 (Finished)

  • iSupport (A randomised controlled trial & feasibility study of the effects of an e-health intervention ‘iSupport’ for reducing distress of dementia carers, especially in the ongoing pandemic of COVID-19.

    01/01/2021 – 30/06/2025 (Active)

    Description

    NHS guidelines recommend informal carers of people living with dementia such as family and friends should be offered training to help them develop care skills and manage their own physical and mental health. The World Health Organisation recommend access to affordable, proven, well-designed, online technologies for education, skills training and support for dementia carers.

    In response to these recommendations, we will carry out the first study in the UK of the benefits of an online training and support programme. This was developed by the World Health Organisation and is called ‘iSupport’. It is designed for dementia carers to help them provide good care and take care of themselves. Carers can use iSupport at their own pace. They can access whichever parts of iSupport they feel are most relevant to them from their place of choice using a computer, tablet or smartphone.

    We will do this research with the help of 356 dementia carers in England, Wales and Scotland by:

    1. Examining the effectiveness of iSupport in reducing distress through a randomised controlled trial. Half of the carers will complete iSupport and half will receive information leaflets. We will translate iSupport into Welsh for use in this aspect of our research. All the carers will answer questionnaires about stress and strain, mental health, resilience and knowledge of dementia. They will do this three times over a six month period. By comparing the two groups, we will be able to show whether iSupport is better than simply giving information. Those receiving the information leaflets will be given full access to iSupport at the end of our study.

    2. Understanding what aspects of iSupport carers like the most, and what might put them off using it. We will undertake interviews with a smaller group (50) of the carers and have a longer discussion about their thoughts, feelings and the impact of iSupport on themselves. They will do this three times over a six month period.

    3. Examining the potential costs and benefits of iSupport. This will involve carers answering questions about health and social care service use and their quality of life. They will do this three times over a six month period.

    4. Adapting iSupport for young carers (age 11-17). There are currently no evidence-based support interventions for young carers of people with dementia. We will work with a group of young carers and adapt iSupport for their use, identify what outcomes are most important to them, and assess this new version of iSupport with 30 young carers.

    It is important we do this work because most people living with a dementia are cared for at home, supported by a family member or friend who has limited knowledge of the condition. The role is very stressful, and many carers experience more mental and physical illness compared to people who are not dementia carers. Covid-19 has meant that many older people have to self-isolate, placing

    increasing pressures on carers.

    If we show iSupport helps carers, service providers will benefit by knowing there is a proven service they can recommend to dementia carers. Carers will benefit from reductions in psychological distress and improvements in skills and resilience. People living with dementia will benefit from a better equipped carer. Society will potentially benefit from reduced care costs, as improving care at home can delay care-home admission.

    From the very start of the study, we will develop a comprehensive plan for ensuring our findings are communicated to people who need to hear about them. We will do this together with our collaborators, who include people living with dementia, carers, as well as academics, clinicians, charities along with the World Health Organisation.

    Key findings

    Work in progress

  • CADR (Centre for Ageing and Dementia Research)

    01/04/2020 – 15/04/2025 (Finished)

    Description

    The Centre for Ageing & Dementia Research (CADR) will cultivate an integrated research Centre in Wales delivering world-class interdisciplinary and translational research and nurture the development of a critical mass of researchers with expertise and competencies in a holistic (eco-bio-psycho-social) approach to research on ageing. Eco: The physical environment in which we live encompassing mobility (transport systems), the natural world (aesthetics, climate, natural resources), the built environment (rural/urban neighbourhoods, homes/housing). Bio: The body as a biological system including brain, disease, injury. Psycho: Cognitive processes (thinking) that influence the way experiences are interpreted. Social: The cultural, social and community systems1 of interacting people(s) with different levels of access, privilege and power. Importance of CADR Our new approach is underpinned by the World Health Organization’s (2015) definition of healthy ageing. Every person […] should have the opportunity to live a long and healthy life. Yet, […] environments are highly influential on our behaviour, our exposure to health risks […], our access to quality health and social care and the opportunities that ageing brings. Healthy Ageing is about creating the environments and opportunities that enable people to be and do what they value throughout their lives. CADR’s strength is our holistic approach to addressing a societal ‘grand challenge’ and the opportunities posed by longevity. We aim to improve the lives of older people and carers through the integration of research on ageing, policy and practice. Our outputs will respond to national and global priority areas for unmet need: improving opportunities to live a long and healthy life; improving health and social care systems (including long-term care); creating age friendly environments; and helping to diminish the impact of dementia. Our work will be delivered through 4 interlinked work packages (WPs): WP1: Environments of Ageing (Eco) WP2: Characterising dementia and cognition in ageing (Bio) WP3: Social inclusion for health and wellbeing in later life (Psycho and Social) WP4: Research methods, public and professional engagement and involvement Strategic Objectives We will generate new knowledge by: Including health and social care services Forging a shared mission to deliver an interdisciplinary understanding of ageing and dementia Providing the infrastructure to enable leading researchers in ageing and dementia research to compete globally Developing and building research capacity underpinning increased grant capture, establishing essential research resources, novel skills and technologies, and building critical mass for PhD students and early career researchers Providing a platform for collaborations and internationally competitive interdisciplinary and translational research that will have impact on the health and wellbeing of older people To address health and social care needs of older people in Wales we will:  Involve and engage the public to ensure that research addresses the needs of older people, people with dementia and carers  Facilitate translation of eco-bio-psycho-social findings into clinical and social care practice  Involve and engage policy makers and practitioners, establishing research priorities and collaborations and working with them to improve services for older people  Develop and facilitate business and clinical linkages, contributing to the health and wealth of Wales as well as enhancing the Life Science sector

  • The impact of peer support networks for those living with rare dementias

    01/01/2019 – 17/09/2024 (Finished)

    Description

    We will carry out the first major study of the value of support groups for people living with or caring for someone with a rare form of dementia. 1)WS1 [Retrospective Cohort Study]. Understanding the problems faced and care received through a retrospective cohort study of >1000 current and historical members to create the first mapping of abilities, challenges, care needs, care events, and health and care resource use (including informal/familial care) in the rarer dementias across all stages of dementia.2)WS2 [Theoretical development]. Identifying the ‘active ingredients’ of support groups through theoretical development. Mixed-methods including (i) literature review using the principles of realist synthesis; (ii) situational analysis and focussed ethnographic work involving a sub-sampling of members; (iii) analysis of WS1 interview dataset; and (iv) iterative construction of general Theory of Change (ToC) and nested sub-theories.3)WS3 [Measures]. Optimising and innovating measure selection and development We will review existing relevant concepts and measures iteratively as WS2 theory develops. We will identify a primary measure of effect (e.g. DEMQOL, Smith et al., 2007) to enable exploratory cost effectiveness. We will develop and test a resilience outcome measure suitable for different forms of dementia.4)WS4 [Prospective longitudinal cohort study]. Evaluating the impact and pathways to impact of multi-component support groups on new members through a prospective longitudinal cohort study. Methods: Mixed methods to evaluate how membership and degree of involvement are associated with outcomes at 6-monthly intervals.5) WS5 [Intervention development]. Theory-driven design and feasibility testing of a new, online multicomponent support intervention for carers of people living with FTD.6)WS6 [Economic analysis]. Investigating cost effectiveness through economic analysis7)PhD studentships 8)Embedded case studies in rural Wales and Canada will explore aspects such as rural living which may support or exacerbate the experience of living with dementia.

  • KESS II MRes with Dementia Go- BUK2157

    01/08/2018 – 01/08/2022 (Finished)

  • Co-creating a resilience building framework for people living with dementia and their carers

    01/01/2018 – 01/08/2022 (Finished)

  • Evaluation of Psychosocial Support of the transition to retirement’ (Evaluation of TILL Phase 2)

    01/12/2017 – 01/08/2019 (Finished)

  • In memoriâ and the Imagination café

    15/11/2017 – 01/08/2019 (Finished)

  • Enhancing resilience and quality of life through arts and science research

    01/11/2016 – 01/08/2019 (Finished)

  • Created out of mind:changing perceptions of dementia through art & culture

    03/10/2016 – 01/08/2019 (Finished)

    Description

    Created Out of Mind is a team aiming to explore, challenge and shape perceptions and understanding of dementias through science and the creative arts. The team will explore what dementia means to us all, challenge traditional definitions and common misconceptions, and unlock what we can learn about art, consciousness and the brain from the experiences of people living with different the dementias.

    Launched in October 2016, and working over a period of 22 months, Created out of Mind are the second residents of The Hub- a unique, creative space at Wellcome Collection in London. Starting with people with dementias, Created out of Mind is an interdisciplinary team of scientists, visual artists, musicians, broadcasters, clinicians and carers.

    Links:

    • http://www.createdoutofmind.org/
  • Created out of mind:changing perceptions of dementia through art & culture

    03/10/2016 – 01/08/2019 (Finished)

    Description

    Created Out of Mind is a team aiming to explore, challenge and shape perceptions and understanding of dementias through science and the creative arts. The team will explore what dementia means to us all, challenge traditional definitions and common misconceptions, and unlock what we can learn about art, consciousness and the brain from the experiences of people living with different the dementias.

    Launched in October 2016, and working over a period of 22 months, Created out of Mind are the second residents of The Hub- a unique, creative space at Wellcome Collection in London. Starting with people with dementias, Created out of Mind is an interdisciplinary team of scientists, visual artists, musicians, broadcasters, clinicians and carers.

    Links:

    • http://www.createdoutofmind.org/
  • Alzheimers Europe Carers' Survey

    01/04/2016 – 17/09/2024 (Finished)

  • Imagining Dementia Supportive Communities through the Arts

    01/02/2016 – 01/08/2022 (Finished)

  • CADR (Centre for Ageing and Dementia Research)

    01/04/2015 – 15/03/2021 (Finished)

    Links:

    • http://www.cadr.cymru/en/
  • ‘Try Something New’ evaluation

    01/02/2015 – 31/07/2015 (Finished)

  • Dementia and Imagination showcase 2014

    01/06/2014 – 25/08/2016 (Finished)

  • NHS Service Support for r26R06 Dementia & Imagination project

    01/04/2014 – 22/07/2015 (Finished)

  • Cadwyn Môn Evaluation

    01/11/2013 – 31/10/2016 (Finished)

    Links:

    • https://www.owensutton.com/cadwyn-mon-eng/files/assets/basic-html/page6.html
  • OPERAT (Older People’s External Residential Assessment Tool)

    01/10/2013 – 06/05/2016 (Finished)

    Links:

    • https://www.operat.co.uk/operat-app-and-training-resources
  • Dementia and imagination showcase 2013

    01/08/2013 – 11/11/2013 (Finished)

  • Dementia and Imagination

    01/07/2013 – 17/08/2018 (Finished)

  • NHS Service Support for r26011 Lifestyle Matters project

    01/04/2012 – 29/02/2016 (Finished)

  • Dementia and Imagination

    01/02/2012 – 22/03/2013 (Finished)

    Links:

    • http://dementiaandimagination.org.uk/
  • Lifestyle Matters

    01/12/2011 – 08/08/2016 (Finished)

    Links:

    • https://www.sheffield.ac.uk/scharr/sections/dts/ctru/lifestyle_matters
  • Lifestyle Matters

    01/12/2011 – 30/11/2015 (Finished)

  • Challenges and Healthy Ageing:the role of resilience across the life course (ResNet)

    01/05/2009 – 23/07/2010 (Finished)

    Description

    Funded through the Lifelong Health and Wellbeing Cross-Council Programme, the network aimed to:

    Unite and build upon previous work and existing evidence undertaken on resilience, and strengthen this with new perspectives and collaborations, thereby enhancing research capacity and development. It will develop a research, knowledge transfer and dissemination strategy and subsequent research bids that reflect a multi-disciplinary life course perspective to healthy ageing. This will be conducted using an approach that will increase the potential of knowledge transfer throughout the process. This will generate new knowledge for research, policy and practice on the multi-layered complexities of the ageing process and resilience which cannot be understood from a single disciplinary perspective.

    Links:

    • http://resilience.bangor.ac.uk
  • MRC network: A model to guide investment in older people¿s mental capital, mental health and wellbeing

    01/05/2009 – 31/07/2011 (Finished)

  • Promotong Well-Being Of Older People

    19/02/2007 – 06/03/2008 (Finished)

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