2025

• PublishedSense of coherence, subjective burden, and anxiety and depression symptoms in caregivers of people with dementia: Causal dynamics unveiled by a longitudinal cohort study in Europe.
  Goncalves-Pereira, M., Marques, M., Alves, R. F., Jelley, H., Wolfs, C., Meyer, G., Bieber, A., Irving, K., Hopper, L., Zanetti, O., Portolani, D. M., Selbaek, G., Rosvik, J., Skoldunger, A., Sjölund, B.-M., de Vugt, M. E., Verhey, F. & Woods, B., 15 Mar 2025, In: Journal of Affective Disorders. 373, p. 1-11 11 p.
  Research output: Contribution to journal › Article › peer-review

2024

• PublishedAddressing relationship quality of people with dementia and their family carers: which profiles require most support?
  Marques, M., Woods, B., Jelley, H., Kerpershoek, L., Hopper, L., Irving, K., Bieber, A., Stephan, A., Skoldunger, A., Sjölund, B.-M., Selbæk, G., Røsvik, J., Zanetti, O., Portolani, D. M., Marôco, J., Janssen, N., Tan, E. Y. L., de Vugt, M., Verhey, F. & Gonçalves-Pereira, M., 11 Sept 2024, In: Frontiers in Psychiatry. 15, 10 p., 139466.
  Research output: Contribution to journal › Article › peer-review

2023

• PublishedWorking together to research the everyday lives of people living with dementia and those supporting them
  Seddon, D., Davies, T. & Jelley, H., 13 Oct 2023, Routledge International Handbook on Participator Approaches in Ageing Research. Urbaniak, A. & Wanka, A. (eds.). 1 ed. London: Routledge, Vol. 1. p. 331-338 8 p.
  Research output: Chapter in Book/Report/Conference proceeding › Chapter › peer-review

2022

• PublishedAssociations between unmet needs for daytime activities and company and scores on the Neuropsychiatric Inventory-Questionnaire in people with dementia: a longitudinal study
  Actifcare Consortium, 3 Apr 2022, In: Aging and Mental Health. 26, 4, p. 725-734
  Research output: Contribution to journal › Article › peer-review

2021

• PublishedCarers’ experiences of timely access to and use of dementia care services in eight European countries
  Jelley, H., Kerpershoek, L., Verhey, F., Wolfs, C., de Vught, M., Bieber, A., Stephan, A., Meyer, G., Michelet, M., Selbaek, G., Sjölund, B.-M., Skoldunger, A., Hopper, L., Irving, K., Marques, M. J., Conceição Balsinha, M., Gonçalves-Pereira, M., Portolani, D. M., Zanetti, O. & Woods, R., Feb 2021, In: Ageing and Society. 41, 2, p. 403-420 18 p.
  Research output: Contribution to journal › Article › peer-review
• PublishedDevelopment of best practice recommendations to enhance access to and use of formal community care services for people with dementia in Europe: a Delphi process conducted by the Actifcare project
  Røsvik, J., Michelet, M., Engedal, K., Berg, S., Bieber, A., Goncalves-Pereira, M., Portolani, D. M., Hopper, L., Irving, K., Jelley, H., Kerpershoek, L., Meyer, G., Marques, M. J., Sjölund, B.-M., Skoldunger, A., Stephan, A., Verhey, F., de Vugt, M., Woods, B. & Wolfs, C. & 2 others, Zanetti, O. & Selbaek, G., Dec 2021, In: Aging and Mental Health. 25, 12, p. 2298-2309
  Research output: Contribution to journal › Article › peer-review

2020

• PublishedDo caregiver profiles predict the use of dementia care services? Findings from the Actifcare study
  Kerpershoek, L., Woods, R., Wolfs, C., Verhey, F., Jelley, H., Bieber, A., Stephan, A., Michelet, M., Selbaek, G., Handels, R., Wimo, A., Hopper, L., Irving, K., Marques, M. J., Gonçalves-Pereira, M., Portolani, E., Zanetti, O., de Vugt, M. & Consortium Actifcare, 1 Feb 2020, In: Aging and Mental Health. 24, 2, p. 272-279
  Research output: Contribution to journal › Article › peer-review
• PublishedInterventions to enhance access to and utilization of formal community care services for home dwelling persons with dementia and their informal carers. A scoping review
  Røsvik, J., Michelet, M., Engedal, K., Bieber, A., Broda, A., Goncalves-Pereira, M., Hopper, L., Irving, K., Jelley, H., Kerpershoek, L., Meyer, G., Marques, M. J., Portolani, E., Sjölund, B.-M., Skoldunger, A., Stephan, A., Verhey, F., de Vugt, M., Woods, R. & Wolfs, C. & 3 others, Zanetti, O., Selbaek, G. & Consortium Actifcare, 1 Feb 2020, In: Aging and Mental Health. 24, 2, p. 200-211
  Research output: Contribution to journal › Review article › peer-review
• PublishedProfiles of Met and Unmet Needs in People with Dementia According to Caregivers’ Perspective: Results from a European Multicenter Study
  Janssen, N., Handels, R. L., Kohler, S., Gonçalves-Pereira, M., Marques, M. J., Irving, K., Hopper, L., Bieber, A., Orrell, M., Selbæk, G., Michelet, M., Wimo, A., Zanetti, O., Portolani, D. M., Evers, S. M. A. A., Verhey, F. & Actifcare Consortium, 1 Nov 2020, In: Journal of the American Medical Directors Association. 21, 11, p. 1609-1616
  Research output: Contribution to journal › Article › peer-review

2019

• PublishedA Collaborative approach: Care staff and families working together to safeguard the quality of life of residents living with advanced dementia
  Hughes, S., Woods, R., Algar-Skaife, K., Jelley, H. & Jones, C., 13 May 2019, In: Journal of Central Nervous System Disease. 11, p. 1-9 9 p.
  Research output: Contribution to journal › Article › peer-review
• PublishedOptimizing access to and use of formal dementia care: Qualitative findings from the European Actifcare study
  Kerpershoek, L., Wolfs, C., Verhey, F., Jelley, H., Woods, R., Bieber, A., Bartoszek, G., Stephan, A., Selbaek, G., Eriksen, S., Sjölund, B.-M., Hopper, L., Irving, K., Marques, M. J., Gonçalves-Pereira, M., Portolani, D., Zanetti, O. & de Vught, M., Sept 2019, In: Health and Social Care in the Community. 27, 5, p. e814–e823 10 p.
  Research output: Contribution to journal › Article › peer-review
• PublishedRelationship quality and sense of coherence in dementia: results of a European cohort study
  Marques, M. J., Woods, R., Hopper, L., Jelley, H., Irving, K., Kerpershoek, L., Meyer, G., Bieber, A., Stephan, A., Skoldunger, A., Sjölund, B.-M., Selbaek, G., Rosvik, J., Zanetti, O., Portolani, E., de Vugt, M., Verhey, F., Gonçalves-Pereira, M. & Consortium Actifcare, May 2019, In: International Journal of Geriatric Psychiatry. 34, 5, p. 745-755 11 p.
  Research output: Contribution to journal › Article › peer-review

2018

• PublishedBarriers and facilitators to the access to and use of formal dementia care: Findings of a focus group study with people with dementia, informal carers and health and social care professionals in eight European countries
  Stephan, A., Bieber, A., Hopper, L., Joyce, R., Irving, K., Zanetti, O., Portolani, E., Kerpershoek, L., Verhey, F., de Vught, M., Wolfs, C., Eriksen, S., Røsvik, J., Marques, M. J., Gonçalves-Pereira, M., Sjölund, B.-M., Jelley, H., Woods, B. & Meyer, G., 4 Jun 2018, In: BMC Geriatrics. 18, 131.
  Research output: Contribution to journal › Article › peer-review
• PublishedImpact of Untimely Access to Formal Care on Costs and Quality of Life in Community Dwelling People with Dementia
  Janssen, N., Handels, R. L., Skoldunger, A., Woods, B., Jelley, H., Edwards, R. T., Orrell, M., Selbaek, G., Rosvik, J., Goncalves-Pereira, M., Marques, M. J., Zanetti, O., Portolani, E., Irving, K., Hopper, L., Meyer, G., Bieber, A., Stephan, A., Kerpershoek, L. & Wolfs, C. A. G. & 4 others, de Vugt, M. E., Verhey, F. R. J., Wimo, A. & Consortium Actifcare, 23 Nov 2018, In: Journal of Alzheimer's Disease. 66, 3, p. 1165-1174
  Research output: Contribution to journal › Article › peer-review
• PublishedNeeds and quality of life of people with middle-stage dementia and their family carers from the European Actifcare study. When informal care alone may not suffice
  Kerpershoek, L., de Vugt, M., Wolfs, C., Woods, R., Jelley, H., Orrell, M., Bieber, A., Meyer, G., Selbaek, G., Handels, R., Wimo, A., Hopper, L., Irving, K., Marques, M. J., Gonçalves-Pereira, M., Portolani, E., Zanetti, O. & Verhey, F., Jul 2018, In: Aging and Mental Health. 22, 7, p. 897-902 6 p.
  Research output: Contribution to journal › Article › peer-review
• PublishedQuality of Life, Care Resource Use, and Costs of Dementia in 8 European Countries in a Cross-Sectional Cohort of the Actifcare Study
  Handels, R., Skoldunger, A., Bieber, A., Edwards, R., Gonçalves-Pereira, M., Hopper, L., Irving, K., Jelley, H., Kerpershoek, L., Marques, M. J., Meyer, G., Michelet, M., Portolani, E., Røsvik, J., Selbaek, G., Stephan, A., de Vught, M., Wolfs, C., Woods, R. & Zanetti, O. & 2 others, Verhey, F. & Wimo, A., 23 Nov 2018, In: Journal of Alzheimer's Disease. 66, 3, p. 1027-1040
  Research output: Contribution to journal › Article › peer-review

2017

• PublishedCaregiver profiles in dementia related to quality of life, depression and perseverance time in the European Actifcare study: The importance of social health
  Janssen, E., de Vugt, M., Kohler, S., Wolfs, C., Kerpershoek, L., Handels, R., Orrell, M., Woods, R., Jelley, H., Stephan, A., Bieber, A., Meyer, G., Engedal, K., Selbaek, G., Wimo, A., Irving, K., Hopper, L., Marques, M., Gonçalves-Pereira, M. & Portolani, E. & 2 others, Zanetti, O. & Verhey, F., Jan 2017, In: Aging and Mental Health. 21, 1, p. 49-57 9 p.
  Research output: Contribution to journal › Article › peer-review
• PublishedPerspectives of policy and political decision makers on access to formal dementia care: Expert interviews in eight European countries
  Broda, A., Bieber, A., Meyer, G., Hopper, L., Joyce, R., Irving, K., Zanetti, O., Portolani, E., Kerpershoek, L., Verhey, F., de Vught, M., Wolfs, C., Eriksen, S., Røsvik, J., Marques, M. J., Gonçalves-Pereira, M., Sjölund, B.-M., Woods, R., Jelley, H. & Orrell, M. & 1 others, Stephan, A., 3 Aug 2017, In: BMC Health Services Research. 17, 518, p. 1 14 p.
  Research output: Contribution to journal › Article › peer-review

2016

• PublishedAccess to timely formal dementia care in Europe: protocol of the Actifcare (ACcess to Timely Formal Care) study
  Kerpershoek, L., de Vugt, M., Wolfs, C., Jelley, H., Orrell, M., Woods, R., Stephan, A., Bieber, A., Meyer, G., Engedal, K., Selbaek, G., Handels, R., Wimo, A., Hopper, L., Irving, K., Marques, M., Gonçalves-Pereira, M., Portolani, E., Zanetti, O. & Verhey, F., 23 Aug 2016, In: BMC Health Services Research. 16, 423, p. 1-7 7 p.
  Research output: Contribution to journal › Article › peer-review

2013

• PublishedAwareCare: a pilot randomized controlled trial of an awareness-based staff training intervention to improve quality of life for residents with severe dementia in long-term care settings
  Clare, L., Whitaker, R., Woods, R. T., Quinn, C., Jelley, H. Y., Hoare, Z. S., Woods, J., Downs, M. & Wilson, B. A., 1 Jan 2013, In: International Psychogeriatrics. 25, 1, p. 128-139
  Research output: Contribution to journal › Article › peer-review
• Published‘It's in the eyes’: how family members and care staff understand awareness in people with severe dementia
  Jelley, H. Y., Quinn, C., Clare, L., Jelley, H., Bruce, E. & Woods, R. T., 28 Aug 2013, In: Aging and Mental Health. 18, 2, p. 260-268
  Research output: Contribution to journal › Article › peer-review

2012

• PublishedAwareCare: Development and validation of an observational measure of awareness in people with severe dementia
  Clare, L., Whitaker, R., Quinn, C., Jelley, H., Hoare, Z. S., Woods, R. T., Downs, M. & Wilson, B., 20 Jan 2012, In: Neuropsychological Rehabilitation: An International Journal. 22, 1, p. 113-133 20 p.
  Research output: Contribution to journal › Article › peer-review